Experiences with

Remicade

164 public posts

Anyone else experience severe low back pain after receiving Remicade Infusions for RA?

Remicade Post infusion pain
in NRAS

Cimzia and Minor Eye Hemorrhage

I've been on Remicade, Humira, Entyvio, and Enbrel and those are just the biologics I've failed. There are endless other failed meds, and I am so very very tired. It has been a long, hard road. I need this to work. I want to try Cimzia again just to make sure it wasn't a one time event.
in Crohn's and Colitis Support

Should You Get the COVID-19 Vaccine If You Have a History of Allergic Reactions to Infused or Injectable Medications?

Two common biologics to be aware of are infliximab (Remicade) and rituximab (Rituxan). Infliximab (Remicade) is a commonly prescribed biologic that can cause allergic reactions in some patients.
lupus-support1Administrator
in LUpus Patients Understanding and Support
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Crohn & Poly / Peripheral Neuropathy

Anyone suffering from neuropathic side effects from Stelara, Humira, Infliximab ( remicade ) or Simponi ? Please let me know. I am interested in neuropathic side- effects !. Also of course if the neuropathic problems come from Crohn of Colitis ulserosa itself. Thanks ! Have Crohn & PNeuropathy
in Crohn's and Colitis Support

Should You Get the COVID-19 Vaccine If You Have a History of Allergic Reactions to Infused or Injectable Medications?

Two common biologics to be aware of are infliximab (Remicade) and rituximab (Rituxan). Infliximab (Remicade) is a commonly prescribed biologic that can cause allergic reactions in some patients.
lupus-support1Administrator
in LUpus Patients Understanding and Support

Should You Get the COVID-19 Vaccine During a Disease Flare-Up?

following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade
lupus-support1Administrator
in LUpus Patients Understanding and Support

7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine

following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade
lupus-support1Administrator
in LUpus Patients Understanding and Support

Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology

This applies to: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
lupus-support1Administrator
in LUpus Patients Understanding and Support

Getting a COVID-19 Vaccine: What to Know If You’re Immunocompromised

If you want to read about the experiences of patients with autoimmune and inflammatory diseases who got the COVID-19 vaccine, check out these patient stories: I Have Lupus, Take Immunosuppressants, and Got the Pfizer COVID-19 Vaccine I Have Ankylosing Spondylitis, Take Remicade, and Got the Pfizer COVID
lupus-support1Administrator
in LUpus Patients Understanding and Support

How to get a drip of infliximab/remicade in US for foreigners?

My name is Sara, I'm italian and I cure my bechet's disease with a 150ml infliximab/remicade drip once every 9 weeks. I'm now planning to temporarily move to the US and I would need to get at least 1 drip there, more precisely in San Diego CA.
in ABDA

Renflexis (remicade) and High liver enzymes

Hi has anyone had any problems with there liver after using remicade? Pls let me know having liver issues and want to know if it’s related thanks
in Crohn's and Colitis Support

Infliximab or Crohns causing joint pain and hair loss?

I was initally on predesilone tapered and subsequently Infliximab/Remicade. I am due my 4th infusion on 14th but not sure whteher to delay this as I am experiencing joint pain/weakness and hair loss. I am not sure if it is the actual crohns disease or infliximab causing this.
in Crohn's and Colitis Support

How long before seeing results from Entyvio?

She is a primary non-responder to Remicade. We have been in the hospital for 17 days today and she has had 2 Entyvio infusions, last one was 3 days ago. She will be getting a second blood transfusion today due to blood loss with bowel movements. Her disease is pretty bad.
in Crohn's and Colitis Support

RD, knee osteo, and daily living when one lives alone

I'm on biologics, had a very recent fail on Remicade soon switching to Orencia. I also take methotrexate. I attempt to manage my pain with anti-inflammatories. I walk with a cane.
in NRAS

How long before Vedolimumab results are seen?

She is a primary non-responder to Remicade. We have been in the hospital for 18 days today and she has had 2 (Entyvio) vedolimumab infusions, last one was 3 days ago. She received a second blood transfusion yesterday due to blood loss with bowel movements. Her disease is pretty bad.
in Crohn's and Colitis Support

NOTHING was Helping My FLARES Until ;

Currently on an IV remicade every 6 weeks! The ONLY thing that has helped my Inflammation, my body pain, my severe fatigue, reflux, anxiety ect is Gluten, Dairy & egg Free! It has been 3 months and I see & feel a huge difference. I literally felt I was going to die soon. I couldn't even walk!
in ABDA

Remicade versus Inflectra

I've found out today, after 16 years on Remicade, they changed it last week to Inflectra without telling me. Has anyone else been switched like this? If so, did you notice any difference? Thanks Ruth
in Behçet's UK

Anyone else on IV Remicade?

Anyone else using IV Remicade for behcet's ??? If so, How is it working for U? I started it now month 3 and it has helped my flares, I wish it completely took it away! Got a dose up this next time.
in ABDA

Feeling Im losing Hope :(

I'm taking colchacine, imuran & have iv remicade every 5 weeks. Im in severe pain in my limbs and burning pain. I don't know what to do. Mobic for pain and it doesn't help. I listened to Anthony William on healing auto immune by cleansing with foods. All fruit & veggies and supplements!!
in ABDA

hospital or urgent care?

i havn't been able to get my remicade infusions for about 3 months and i usually do them monthly. i haven't been able to get into contact with the doctor here either, so i haven't been able to make any appointments (i just switched schools so i'm still figuring everything out). recently my condition
in Crohn's and Colitis Support
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