I am now 56yrs old and was diagnosed when I was 50 in 2006. I was unhappy in the way I was told by the phone by my GP who just dismissed CLL. I have since changed my GP.I was sent after some pushing by myself to my local hospital. Although I was happy enough with them I asked to be referred to a specialist at a London teaching hospital (I got a list of specialist from CLL support group). The cancer grew slowly until May 2010 when I went through a very stressful event. In the same month I experiance night sweats. The next blood test (end of July) was the first bad one I had and was called in to have another one. After discussing the results of the second one my specialist said we would wait a month and see. However, when I saw him in Sept 2010 he felt the time was right to start treatment. I was put on a trial to try to clear up as much residue as possible. Although I was well prepared for Chemo (I had visited the ward, had tests on the ward and met the research nurse) it was the worst time of my life. I was very sick even though I was taking anti sickness drugs. Was admitted to hospital for a couple of days and on another occasion was stablised on the day ward. I rang the support groups phone line and was given strength I needed. After chemo I had no strength at all. I had a problem with my immune system and was given injections throughout treatment but even when treatment stopped it was still a problem and I had to have another bone marrow biopsy with lots of blood tests. They still do not know what was wrong but my immune system it just about OK now.I went on a Survivors course at my local hospital which helped but really it has taken about 18mths to get well It didn't help getting shingles 8mths after treatment. I have found that as a patient you have to be pro active which isn't always easy. I have had the love and support of my husband without which I would not have coped. I do stay in good spirits, I am a glass half full person and wishes everyone a Merry Christmas and a Health New Year
Last edited by HAIRBEAR
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.