Hello All. I was diagnosed with CLL about 8 years ago and until this year was on 'watch & wait' but in August my spleen had enlarged to the extent that I needed treatment. I had my first round of chemo in September when I was given Bendamustine & Rituximab. The effect was dramatic and within 48 hours my swollen lymph nodes had disappeared. I followed instructions about drinking plenty but noticed that my urine was orange coloured and cloudy for a few days. But I felt really well. Then 10 days after my chemo I developed a fever (38.3 degrees) and was hospitalised for 5 days on Tazicin and fluids infusions.
My next round of chemo resulted in another fever and hospitalised for 3 days. And again with my 3rd round I was hospitalised twice in one week. My bloods in the meantime are fairly good but each evening my temp increases to 37ish and I feel feverish. I am due for a review next week of the whole treatment plan depending on my bloods.
I wonder if anybody out there has had a similar experience. If so, I would like to get in touch.