As I've only recently been diagnosed with CLL I really thought my treatment path was pretty much dictated to me - i.e. the doctor I saw at my local hospital is the same person who will lead me through the rest of the CLL maze!
I am a bit naive/inexperienced when it comes to the world of healthcare but is it possible for me to ask to be referred/seen by a CLL specialist (I'm assuming the doctor I've already seen at my local hospital is not a CLL specialist but I've only spoken to her for 15 minutes and, to be honest, I wasn't really aware of what to ask her!)?
I have read that there are advantages in being seen by CLL specialist, as opposed to a cancer/haematology specialist, so it sounds as though this may be something worth persuing.
I live fairly close to the Christie hospital in Manchester where I guess I could locate a CLL specialist - I'm just not sure how to access their services (or even if it's possible without a referral)!
Any pointers/advice/experiences would be, as always, much appreciated.