Australians have your say in getting CLL medic... - CLL Support

CLL Support

24,063 members40,931 posts

Australians have your say in getting CLL medicines approved

lymphomaoz profile image
7 Replies

Hi everyone, I am just reaching out to Aussies on this site to let you know that the following 2 treatments are being considered in March for public funding in Australia. If you would like to make a carer or patient submission about how important the availability of these therapies are for all eligible patients in Australia please add your voice and experiences via this link - PBAC online submission form

www1.health.gov.au/internet...

The 2 therapies are:

1. Venetoclax in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for fludarabine based chemotherapy

2. Acalabrutinib for the treatment of patients with relapsed or refractory CLL or SLL considered unsuitable for treatment with a purine analogue. (chemotherapy)

If you have had access to either of these therapies or would benefit from access please consider making a submission by COB tomorrow - 12th of February. This is our chance to help decision makers bring the right treatments to the right patient at the right time.

Thank you

Written by
lymphomaoz profile image
lymphomaoz
To view profiles and participate in discussions please or .
Read more about...
7 Replies
JanEyre profile image
JanEyre

Hi Lymphomaoz

I’m also in Australia, I have just made a patient submission. Thanks for posting .

Cheers Jan

lymphomaoz profile image
lymphomaoz in reply toJanEyre

Thanks so much

Nathalie99 profile image
Nathalie99

Thank you...submitted as a carer.

lymphomaoz profile image
lymphomaoz in reply toNathalie99

Thank you

AussieNeil profile image
AussieNeilPartnerAdministrator

Done, as a trial patient on Acalabrutinib, Obinutuzumab and Venetoclax.

Thanks for the alert!

Neil

morepork profile image
morepork

Good luck wishes from across the Tasman for those options to be approved.

We have had a free Venetoclax plus Rituximab combo approved by our drug buying agency since last year but not Acalabrutinib, and free Ibrutinib directly from manufacturer only for a certain number of cases.

Elliot43 profile image
Elliot43

I have just sent in my submission. Definitely worthwhile for us mere mortals to add our say too

Sheila In Fremantle Oz

Not what you're looking for?

You may also like...

ATTENTION CLL + SLL PATIENTS AND CAREGIVERS

Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the...
LCAdmin profile image

Survey for CLL patients having taken Venetoclax or Acalabrutinib

CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies,...

UK NICE Approves Ibrutinib +Venetoclax for First Line treatment for ALL Patients from today

Probably one of the best news stories that we have been able to announce in many years for patients...
Jm954 profile image
Administrator

Ibrutinib Slow but steady foreward movement.

Slowly things move forwards… New Marketing Authorisation Application Submitted to EMA for...
Kwenda profile image

EHA 2022: Outcomes Following Treatment With a Covalent BTK and BCL2 Inhibitor

https://cllsociety.org/2022/08/eha-2022-outcomes-following-treatment-with-a-covalent-btk-and-bcl2-in

Moderation team

See all
AussieNeil profile image
AussieNeilAdministrator
CLLerinOz profile image
CLLerinOzAdministrator
SofiaDeo profile image
SofiaDeoAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.