Research survey on CLL/SLL

[bkoffman]

Hi

We are doing some research in follow up to our abstract from ASH 2016 and would appreciate your help.

Participate in an important Survey for Patients with CLL/SLL

• Have you been diagnosed with chronic lymphocytic leukemia or small lymphocytic lymphoma?

• Do you reside in the United States?

If the answer to both questions is “yes”, please read below.

The CLL Society Inc. (CLLS) is conducting a research survey. The purpose of the survey is to help us better understand how CLL/SLL (chronic lymphocytic leukemia/small lymphocytic lymphoma) and the treatments you receive have affected your life and the lives of those around you. Your answers will be used to improve our services and patient programs—and possibly how doctors treat CLL/SLL.

Your answers will be 100% confidential, and no personal identifying information will be collected within the survey. The answers you and other patients provide will be carefully combined and analyzed to create an overall picture of how CLL and its treatment affect the lives of people with CLL. Our goal is to understand CLL from the patient’s perspective.

At the end of the survey you can choose to participate in the Target gift code offer. The first 500 patients who complete the entire survey will be eligible to receive a $50 gift code that can be spent on the Target.com website, or used within their stores.

You can participate in one of two ways:

Access the Online Survey HERE: cllpatient.questionpro.com

OR

Request a Paper Survey by calling 949-667-4CLL or send an email to [e-mail] and provide your name and address and a survey will be mailed to you.

Questions? Email us at [e-mail] or call 949-667-4CLL.

Your Voice Matters! We hope to publish the results and post abstracts at ASCO and ASH. We want providers to know what we rethinking and what we want.

Thanks

Stay strong. We are all in this together

Brian Koffman, MD

[Yorkiemama]

Done!

[bkoffman CLL CURE Hero in reply to Yorkiemama]

Thanks.

[Yorkiemama in reply to bkoffman]

Easy to answer, good questions too! Thank you as always.

Cynthia

[CLLCalifornia-USA]

Filled it out yesterday. Hope it helps to know what we face at diagnosis and beyond. It is a worthwhile survey. Thanks. Sally

[bkoffman CLL CURE Hero in reply to CLLCalifornia-USA]

Thanks for doing it and your words of support.

[gardening-girl]

Dr. Koffman, I just completed the survey and found that it was not possible to enter treatments that were not listed, even though we were asked to do so: "Other outside a clinical trial (please list the therapy)" There is no place available to list "other" therapies.

Thanks for all you do!

[NWcllfighter]

Survey closed when checked on 9/3/18.

[bkoffman CLL CURE Hero]

It is long closed. Sorry, but we will be doing more research next year