Face sores side effects from imbruvica

[Tweetybird1962]

I’m 57 and recently diagnosed with CLL/SLL. I’ve been on 420 mg Imbruvica daily for 8 months with the typical side effects of fatigue, stiff joints, leg cramps, mouth sores and face sores. These side effects I can easily live with, except the face sores. Has anyone found anything that helps minimize this side effect.

This is my first time posting on this site, but have been reviewing as much information as I can get from everyone else’s experiences. You all have given me as much peace of mind possible during this time. Thank you all!!

[lankisterguy Volunteer]

Hi Tweetybird1962,

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There were some recent discussions about skin rashes and Ibrutinib- you can start here and then use the "Related Posts" listed in a box on those postings to find more info.

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healthunlocked.com/cllsuppo...

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Len

[Mprm]

Are the face sores in the form of a rash? Itchy? Or single sores?

I’ve been on Ibrutinib for three months and have been slathering coconut oil on my face prior to washing with Dove soap. This has worked to keep my complexion smooth, but I did have a single sore on my chin, not itchy, more like acne, though I’m 66 and never had bad skin, even when younger. I think it may have been caused by the Ibrutinib, but can’t be sure. It healed after a week.

[Tweetybird1962 in reply to Mprm]

For me they are individual sores, but more than one. I did found a link that explained different skin issues caused from ibrutinib and how she managed them. I have always exfoliated, that is going to stop after reading the article.

patientpower.info/navigatin...

[Mprm in reply to Tweetybird1962]

I watched her video, too, right before I started Ibrutinib. She had some very helpful information and is the reason I started with the coconut oil.

[LynnB1947]

I noticed a resurgence of pimples on my face much like when I was a teenager. Best thing I've found is to keep my beard trimmed. No kidding.

[Sallybroadhurst]

I have had amazing results with NuLight CBD cream.. Coconut oil is used in the CBD oil so maybe the combination is what works amazingly on any type of sores 9 months ibrutinib Dx in 2000

[Tweetybird1962 in reply to Sallybroadhurst]

Where can you order the cream?

[Hoffy]

Oregano oil is great for mouth sores. Just 1 drop on your tooth brush,

It can be strong so maybe rinse with water ,

Be well,

Hoffy