Hello all! I have been a lurker for about a month. My 57 yo husband was recently diagnosed with CLL. Diagnosis was confirmed by flow cytometry. He has swollen lymph nodes throughout his body and a slightly swollen spleen.
He received his FISH test results today, and they were "normal". He is negative for ZAP-70 and CD38 which I understand is good news. He spoke to the local oncologist today who said that he probably would not need treatment for 10 years and that no follow up visits were necessary (?). I did not like the laid-back approach of this guy when we first met him, but I have never heard of a case where a patient was not given a plan for follow-up visits. Thankfully, we have an appointment in Seattle next week with an expert.