Isn't it time for some Good NEWS??: My husband... - CLL Support

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Isn't it time for some Good NEWS??

kathymac52 profile image
27 Replies

My husband started Ibrutinib in April after his BR chemo failed. He is 11q deleted. We were just at the doctor's this week, and his blood work came back with near normal ranges!!! His white blood count was 10.0, his red blood cells were 4.7, his platelets were 154!!! His neutrophils were 1.9 (low normal)!! His lymphycites are still very high 7.5 and 71%....but that is down as well. A year ago today, his WBC was at 160,000 and he had mouth sores, fatigue, fever, swollen nodes, skin infections, enlarged spleen, and had lost 25 pounds. For over 5 months, he was neutropenic with neutrophils at 0 to .5. So for now, this very minute......we feel encouraged, blessed and he is out golfing as we speak. Our next appt. is in A MONTH!!! Keep the faith everyone......

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kathymac52
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27 Replies
DebKat999 profile image
DebKat999

Woohooo, WONDERFUL news, thank you for sharing this update! Sending my heartfelt congratulations to you both Kathy!

Debbie

kathymac52 profile image
kathymac52 in reply to DebKat999

Thanks Deb....just wanted to encourage everyone today!!

noeagaman profile image
noeagaman

Very good news for you both! Relax and enjoy the new moment of joy. You both deserve some good news and I am very happy to hear that you got just that. I hope that your husband get's many more games of golf in and that you both get to enjoy life to the fullest...:)

Chris

kathymac52 profile image
kathymac52 in reply to noeagaman

Thank you Chris....I am a very spiritual woman and have sent up prayers of thanksgiving!!

PlanetaryKim profile image
PlanetaryKim

Awesome news Kathy!

kathymac52 profile image
kathymac52 in reply to PlanetaryKim

Thank you Kim....I think of you all as family, and wanted to share!

PaulaS profile image
PaulaSVolunteer

Great news Kathy. Thanks so much for sharing. :-)

Rejoicing with you,

Paula

kathymac52 profile image
kathymac52 in reply to PaulaS

Thanks Paula.....just wanted to lift some spirits today, as our are lifted!!!

I bet your pleased, really good news and hopefully continued success.

Stuart

kathymac52 profile image
kathymac52 in reply to

Thanks Stuart.....we are pleased, surprised and enjoying this feeling of normalcy.

Jm954 profile image
Jm954Administrator

🎉😊👍🎉

Justasheet1 profile image
Justasheet1

Sounds like Ibrutinib was his hole in one.

You both enjoy this and deserve this.

Jeff

kathymac52 profile image
kathymac52

Thanks jeff, my husband really laughed at that one......we feel lucky for this moment in time.

JR1964 profile image
JR1964

Kathy, That is wonderful!!! Keep having the FAITH AND BELIEVIN!!!! STAY STRONG J.R. 🤠🤠🤠

kathymac52 profile image
kathymac52 in reply to JR1964

Thanks JR......now if we can keep affording that drug.....we will stay strong!!

Philipoc profile image
Philipoc

Such a great story !!

kathymac52 profile image
kathymac52 in reply to Philipoc

It has been a rough couple of years, but nothing makes me smile more than to see some color in my husband's face.....and see his energy increase!!

migirlusa profile image
migirlusa

Wonderful news💃

kathymac52 profile image
kathymac52 in reply to migirlusa

Thank you......have to keep pushing forward......hoping the trial of Ibrutinib and Venetoclax is successful....been hearing great things...

pkpayne profile image
pkpayne

Yahoo! Great news and thanks for sharing it! Long may it last.

Paula

kathymac52 profile image
kathymac52 in reply to pkpayne

Amen.....long may it last.......( we have to figure out how to keep affording this miracle drug, tho.......we have a grant but it will run out in two more prescriptions.....)

Wroxham profile image
Wroxham

Good news for you both.

Sue

kathymac52 profile image
kathymac52 in reply to Wroxham

Yes, we are actually planning a Sept. vacation......had to cancel two of them last year....

Sojomama13 profile image
Sojomama13

Thank you for sharing this wonderful news. Here's to good health!

kathymac52 profile image
kathymac52

Here's is to good health for all of us!!!

Oh, Kathy

I am so happy to hear this from you. This is such great news.

Scott

kathymac52 profile image
kathymac52 in reply to

yes, big guy......your time will come.....and you will get better! Just keep the smiles.....and your wicked sense of humor which we all have grown dependent on!!

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