CLL - 5 years post FCR

[Cheshire2016]

just wanted to share our news that today we have now celebrated 5 years post FCR .

My husband was diagnosed in 2016 with CLL. We then had nearly 5 years of W&W until treatment beckoned in the most unfortunate year - 2020 covid., where we were allocated FCR via the UK flair trial.

He’s IGVA unmutated. - let’s hope this remission continues..

Spreading hope and optimism to all xxx

[BigfootT]

Congratulations!

[Homebody123]

Fabulous for you both - congratulations!

[GMa27]

I am almost 7 years in remission from FCR! Cheers to us all & many more years.

[sue2412]

congratulations🎉🎉 it’s 5 years in remission following FCR for me too. Here’s to many more years 😸

[ABP45UK]

May you and your husband enjoy many more years in remission. I am unmutated and finished FCR in Dec 2018 in UK. 6 years so far and bloods still stable. Long may that continue for us all!

[MF79]

Almost 9 years in remission post FCR, on flair trial. I was disappointed 9 years ago when allocated to FCR, that is no longer the case.

[bennevisplace]

Nice going Cheshire. Timewise I'm right behind you, another Flair-FCR survivor.

[Headers]

Brilliant - keep up the good work👍

[CguLLer]

Great. 10 + years post FCR and counting for me.

[Sunrisejoy]

Bravo and appreciate this wonderful update! 🎉

[Smakwater]

Alway love to hear good news Cheshire2016.

Is Cheshire relative to the famous smile of the Cheshire Cat?

Keep smiling!

JM

[Cheshire2016 in reply to Smakwater]

Cheshire is where we live and also like the proverbial cat how we are smiling at these latest blood results !

[Smakwater in reply to Cheshire2016]

Aah, A double bonus!

[holeinthespeaker]

Yay! Congratulations!!

[Analeese]

Congratulations ! That’s awesome news.

[TrenchcoatPenguin]

Congratulations! May his remission be long lasting.

[Dinasantos]

great news!🎉🎉🎉

[Pinkcar]

Great news! I had FCR 2011 on the Arctic trial and still in remission. Forever grateful. May your remission be long lasting too.

[Teresa252]

Thats great news, delighted for you!I'm also still in remission after having FCR in 2017.. love to hear good news stories, as it's usual press is bad 😀Happy Friday all!

[UnusualCakeroll]

Congratulations! Very hopeful news for me I'm waiting for Fcr.

[MelloYellowMe]

Congrats to your husband! 🎉 I am new to CLL and I am also unmutated IGHV. I thought we weren’t allowed to to FCR if we had unmutated? Interested to learn more.

[AussieNeil Partner Administrator in reply to MelloYellowMe]

As Cheshire2016 stated, her husband was "allocated FCR via the UK flair trial". In that trial, patients were randomly allocated to either FCR, which was the gold standard treatment at the time, or various arms including ibrutinib, with or without other drugs, such as venetoclax, to assess how patients fared in comparison with FCR. It was brave people like Cheshire's husband and others on previous trials, that determined that ibrutinib was vastly superior to FCR for unmutated IGHV folk.