I’m a general practitioner doctor from Turkey.
I’ve been following this forum for a while, since my mom(she is 60 y.o.) was diagnosed with CLL 4 years ago. Her initial WBC was around 20.000. She has been on W&W schedule for all the time. Never got any treatment. On last visit to our hematologist, he told us that the time is come for treatment! Although, she has no any symptoms (fever, fatigue, night sweats etc.) or signs (Hb and PLT levels are normal, no significantly enlarged lymph nodes, however she has several LAP’s), just because WBC doubled in the past 6 months (from 100k to 200k), treatment scheduled for next week ( CR - Cyclophosphamide + Rituximab for 3 weeks).
Despite the fact that, I’m also doctor, I’m quite worried with the particular treatment protocol. I would like to hear from you guys. When I see many people in this forum living with CLL for many years, it kinda gives me a strength and endurance.
My mom is positive for 13q mutation. She has no other kind of mutations. Last USG scan revealed some hypo-echoic areas in the spleen. Our hematologist told us not to worry but he ordered MR scan, just in case.
After giving some info about my mom, I would like to ask couple of questions to you guys;
1) My mom has been using Ganoderma (Reishi mushroom) products, which is I’m oppose to, but she hopes help from that. I worry it could be the reason of the rapid increase of the WBC’s. Do you guys have any opinion on the effects of Reishi products?
2) As a doctor, I know that nodules in the spleen might be associated with CLL or any other malignancies (lymphoma). Has anyone have splenic nodules ? Any experiences ?
3) Can I get advises and experiences from patients who started their treatment with CR protocol ?
I respect and love all of you guys. I wish all the best for you guys. Thanks for all the answers in advance.
Today, I talked to doctor. He told me he meant Chlorambucil, not Cyclophosphamide. He wants to start Chlorambucil + Rituximab.
Sorry for mistake. I confused