SCT just got real.

[KAS8]

I had my bone marrow trephine 2 weeks ago and, having not recieved a follow up appointment, decided to call the hospital this morning.

Imagine my surprise when the nurse not only tells me that I have a date for the pre transplant tests, but an admission date for the SCT too.

All became very real suddenly.

[Jm954 Administrator]

Oh gosh, and how do you feel about it now?

Excited, nervous, still can't quite believe it? I think I'd be all those things and more. I'm sending lots of good vibes and best wishes to carry you on your way with this.

[KAS8 in reply to Jm954]

All of the above. I've had sleepless nights in anticipation but there will be many more between now and the main event.

[Jm954 Administrator in reply to KAS8]

I can imagine, I would be too but there must be comfort in that this is a carefully made decision and everyone agrees it's the right treatment for you.

Stay well ......

[Hoffy]

Get a second opinion? Any CAR-T trails in the UK?

Be well,

Hoffy

[cartwheels]

Wishing all goes well and I'm sure it will in some ways I'm envious but I know that stc is on my treatment list after ibrutinib and veneticlax stop working hopefully a long way off as yet. Keep us posted we are all in this together just down different paths

Go get em kas x

[KAS8 in reply to cartwheels]

I am looking forward to being able to say I used to have CLL and getting back to normality x

[HB50 in reply to KAS8]

Hi KAS8,

I understand how you feel - both the fear of the procedure as well as the hope for cure. As I just went through one this past November and coming up on day+200, it's all still pretty fresh. So if you would like to chat privately I am certainly open to it , and perhaps I cwill be able to help in some way.

Take good care.

[KAS8 in reply to HB50]

That would be fantastic. Thank you. I have spoken to one lady in the US who had it a few years ago and a lady in Canada as she went through it this year but always good to benefit from advice!

Could I message you next week when schools back in please? x

[Sushibruno in reply to KAS8]

Hi im curious what is SCT?

[KAS8 in reply to Sushibruno]

Stem cell transplant - bone marrow transplant essentially

[Rafe]

Wishing you all the best. It would be fantastic to get this all behind you.

[migirlusa]

Best wishes for a wonderful outcome.

[fell]

Best wishes!!

[Fran57]

Best wishes and hope all goes well!

Fran 😉

[Mystic75]

All the best to you!!

[Glees]

My husband is day 116 post transplant. It is a long and difficult process, but he is here and getting stronger each day. If you want more info you are welcome to message me also.

[KAS8 in reply to Glees]

Thank you. I will this week if that's ok x

[sumok in reply to Glees]

my husband is a bit over 3 years post SCT (allo, unrelated, 10 for 10 match). he no longer has leukemia! yay! but does suffer quite a bit with GVHD, which is where the new immune system ("New Guy") sees the cells of Original Guy as foreign and attacks them. it is fairly common after SCT. i've read of some discoveries recently about preventing or lightening GVHD that i don't think are in practice yet but show there's research going on.

i offer the same as Glees - feel free to message.

and with everyone else here - sending all best wishes!

[Justasheet1]

🙏🏻

[pkpayne]

All the best to you. Wishing for a cure for you!

[Newdawn Administrator]

Sending you huge best wishes KAS. This must be a very scary time for you but one with incredible hope too. Take care and please keep us updated.

Newdawn