Yesterday was another huge milestone on our BMT road, Day 100 - when we stared back in Nov.2017 this day seemed like a life time away.
I’m so pleased to share with you that Mark has continued to progress very well and blood counts are normal and steady. The results of his bone marrow biopsy at Day 60 were overwhelming as there was 0% of CLL present - we are cautiously optimistic as we know the road is still long.
Mark is also really enjoying not having to take any treatment/meds for the cancer and has really noticed a bit of the “chemo brain” or “fog” being lifted. He is slowly starting to go out a little more which is helping him to feel less isolated.
Again I thank you for your time, love, encouragement and your tremendous support.
The reason we decided to post was to hopefully offer hope for those who sometimes feel there are no other options left for them. The decision for us to go for BMT was a 7 year process. In reading about our experience we hope we could alleviate some fears in helping others who will be faced with the same decision.
Our Hematologist presented it at the very start because Mark was young at 45. And we were very set against it - however it became our last option and the decision was made for us, his 2nd relapse was very aggressive and he was already showing signs of failing on venetoclax after a few short months.
It has been very tough on both sides - when I post it is from a CarePartner’s point of view which we understand is a very different experience then the patients. And having the right support is so important and this HealthUnlocked community is certainly part of my circle of support - CarePartner’s are special people.
Thank you,
NMMP
Complete Remission!
