Hi everyone - for those interested in my Stem Cell Tranplant journey so far, I finally came home after 4 months away in the big smoke -and survived COVID with no immune system!
I got the results from PET scan and the bone marrow biopsy - my bloods were all clear however some activity was found under my arm and the BMB showed still a small amount of cancer cells.
Another thing I learnt was that this is not a fail- In fact the donor stem cells are still engrafting so I’m told that in 3 months time when they repeat the BMB and PET scan it may well be clear and cancer free!
it wasn’t what I was expecting to hear but I’m hopeful and so grateful to be home. I begged the doctor can I return to swimming in the ocean which he agreed probably because it’s all I ask every-time I see him! I’m mostly feeling ok- occasional nausea and unfortunately I got GVHD in my mouth- so I have to keep on top of that.
All this time away from my home and daughter has made me more grateful for all I have and how lucky I am to be given such great care by my Heam Team
Happy Christmas to all - I’ll be going to the beach for a much needed dip into the ocean!
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Billarina
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Congratulations 👏 and enjoy your swimming and your family. To be separated from yours daughter must have been very difficult but now, is the time to celebrate 🙌
Thanks for letting us know about your journey, I think all of us on here are full of admiration for those who had to take the SCT journey. Enjoy the time with your loved ones, have a great time ❤️🎄
Enjoy your swim in the ocean, but do so with much caution. I am amazed that you spent four months in the hospital. It must’ve been a very difficult time for you. My husband was almost 3 months in the hospital. completely immune, compromised blood and platelets daily I spent every day with him and many nights. It seemed like a lifetime by itself. I hope your recovery goes smoothly, and that you find yourself UMRD down the road.Happy Holidays!
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