After taking both drugs for about the last year - as shown in the picture. I am now on the next phase being randomized today for either imbruvica or a placebo of imbruvica.
I went into this arm because I was tested and I am MRD negative in the bone marrow .
By definition I cannot tell what I have but I think I will know quickly based on the side effect profile .
I am a bit concerned if I get the placebo that my CLL could come back relatively quick even though I am am already MRD negative in the bone marrow. My disease was very aggressive before I started the trial .
I was only on watch and wait for a year after diagnosis and my no it’s got very large .
Imbruvica is the gray one and Venetoclax is the tan one below in the picture.
Overall it has been a very good year and three months. My side effects have been not too bad some fatigue some slight stomach issues and brittle nails and fingertips mostly.
Ucsd has told me that many people who were on Venetoclax have gone at least a year without needing treatment again . Hopefully with the addition of imbruvica there will have even a deeper remission.
I will keep you posted!!