hi, just seeking update of the result from the hospital. is your baby fine? i am afraid that pale stool / whitish stool usually is not a good sign before kasai. i experienced my kid had thatpale whitish stool efore kasai but after kasai the stool looked yellowish bright again. for your case, i pray that your baby is jus okay and good.
Hi sameerudeen, Did your daughter have good outcome? What did your medical team have to do in order to revert to green/yellow stools?
My daughter is replicating the same scenario. A month after the Kasai she started having white stool. Her ggt when from 240 to 180 to 352, the last 2 days she had white pale stool. I’m waiting to hear back from the liver specialist.
Thank you for taking the time to respond to my inquiry. I hope your daughter is doing well after her transplant and on her way to a full life worry free. Our doctors are saying that as long as we do not have fever or lost of appetite we should continue to monitor.
My daughter had a Kasai 8 days ago. On 6th day, she passed white stool and her direct bilirubin skyrocketed from 3.5 to 6.5. No stool infection no blood infection. CT shows no sign of blockage. On 8th day, direct bilirubin came to 4.7 and stool became greenish yellow. We are still waiting for direct bili to come down.
Miras dad here. Our daughters ggt is 1348 now. Direct bill came down to 3.3 now which is similar to what it was before surgery. What unit are you measuring bili in? Good luck with your kiddo. Hope everything is fine now.
OK, then you need to divide my number by .0587 to get your number for bili (in US they use mg per deciliter). Our kid had it at Seattle childrens. Was that total or just direct? Paying for the ggt to come down. All the best.
Hi sameerudeen it can take a while for all symptoms to settle, but any changes should be reported to your medical team. You can get our resources here:
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