Kasai: Has anyones child been put on... - Children's Liver ...

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Kasai

Bettyboo5955 profile image
6 Replies

Has anyones child been put on phenobarbital after kasai op?

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Bettyboo5955 profile image
Bettyboo5955
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6 Replies
Shanzay profile image
Shanzay

Yes my baby was put on phenobarbital for four weeks after her kasai

YBiliaryAtrecia profile image
YBiliaryAtrecia

Yes my little one was on that for few weeks. She didn't like it though.

Bettyboo5955 profile image
Bettyboo5955 in reply to YBiliaryAtrecia

My boy has been on it since his op in feb and he hates it. He screamsthe place down every night. And looks around as if he doesnt no where he is. Feel so sorry for him.

Mamabear2 profile image
Mamabear2 in reply to Bettyboo5955

My son was on it for a while and it was awful! :( im so sorry!

Bettyboo5955 profile image
Bettyboo5955

When do you give the phenobarbital? They advised me to give it at night cos can make drowsy but once it kicks in he goes mad for a few hours. Can it b given during day?

Anna80 profile image
Anna80

My son is on phenobarbital and he has 5ml of a night he doesn't like it at all he scream with it.

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