Experiences with

Kasai portoenterostomy

hello my son had a kasai procedure done at 43 days old is one month two weeks postop and is now having white stool again he is having no other symptoms with the White store. Is this normal?

My son was diagnosed with Biliria Artresia at first month after birth. He underwent Kasai procedure at 2nd month. After that his stools are normal and bilirubin is under control. But recently he passed black stools and sometimes blood in the stool. His bilirubin is 0.4 and SGPT is 108 and SGOT is 84.

My daughter had kasai procedure at 78days and we stayed in the hospital for one month in japan and she was recovering well from day one and her jaundice had cleared completely and she was discharged from the hospital on December 2nd 2022 and we stayed in japan for another month she was ok on everything

My daughter had a Kasai procedure a little over a month ago. We noticed today her stool went from bright yellow to pale cream. No temperature, normal appetite and very active. GGT levels fluctuate from 252 to 180 to 352. Could GGT be a factor? Anybody else have experienced a similar case? Did you require

My sons biluribun level came down from 7.5 to 2.4 . Before the surgery direct biluribun was 5.5 after 1 month it is 1.5 when can we consider it as a success. And kasai is done at4. 5 months old

My sister son undergone kasai at 8 weeks old and that time bilirubin count was 4.5 .now he is at 10 months old and his bilirubin count is 2.01 .This means kasai procedure success or not.recently his stomach is bulging and facing disturbed sleep and frequent fever.please guide us

What level of bilirubin is dangerous after kasai procedure ? My son’s bilirubin level is not declining after kasai ….

Hi , my son is 7 and half months old . He had a kasai procedure at 4weeks . His stool colour is not well pigment it’s very peal. Some time it looks light yellow and very few time it looks dark . His scan reports is ok but hiss GGT levels are 1331. I am worryingly about him , can anybody suggest me anything

my son undergone kasai procedure . But when we had not herd of this disease called billiary atresia and had gone for routine checkup for white stool to our Pedeatrician. There lady came to us and suggested the same but after meeting the doctor we were so stressed that we completely forgot about the

My son is 4 years old but his growth is not normal, Please suggest diet for him.Also suggest medicine for etching occurs throughout his body at bedtime . His kasai procedure has been done at the age of 7 weeks .

Bilirubin levels not declining after Kasai procedure for Biliary Atresia procedure 1 week ago. The liver continues to be damaged and another surgery may be needed. Has anyone else successfully gone through this???

Hello, My niece was diagnosed with BA a week ago, and she had the Kasai procedure a few days ago (November 10,2020). We are now waiting for her liver biopsy results (takes 15 days). Her liver appeared to be quite hard, to the surgeon, and she already has fibrosis. She was born August 24, 2020 and

What are the chances of cholangitis after one year of Kasai procedure?My son underwent Kasai procedure one year back,in this one year he had one episodes of cholangitis, our doctor has told to stop prophylactic antibiotics,now his bilirubin is under control....

My son had a Kasai procedure performed at 60 days old. He just had his 2 weeks labs and his bilirubin is a little higher than right after surgery. Did anyone have this happen and go on to have kasai be successful? Thank you! Suzy

my baby boy was underwent kasai on this day 49 of birth. his eyes are still a bit yellowish and stool slowly starting to get yellow. his biopsy report came out a little late. doctors said that they found mild to moderate fibrosis . No cirrhosis . they asked us to remain calm and keep the fingers crossed

Hi my son 6 years old with biliary atresia operated with kasai procedure and he has terrible itching problem. He wakes up during the night because of the problems please any help!!!

Hello Do all children with liver complaints have large abdomens? My daughter was born at 34weeks and underwent a kasai procedure 2 weeks ago when she was 2months old. She is on both antibiotics and steroids. Her tummy was larger than other infants at birth and continues to be quite big. Doctors say there

When I know my daughter is improving after kasai procedure? She did the surgery 10 days ago. Stool is the same color no change I think it is near to white. Do u know any one has done this kind of treatment? When color will change into yellow or green or brown? After the surgery directly or should I

My son got diagnosed on 56th day of life for Kasai procedure due to Biliary Atresia, first 2 weeks, he improved a lot, pop color was light yellow, eyes were becoming white, but on 3rd week after operation, noticed that pale stool and his eyes becoming yellowish, can someone help

It is known that neither Kasai procedure nor liver transplantation is a permanent cure of Biliary atresia. And medical treatment is also very limited (URSO, some antibiotic to prevent Colengetisis etc) and they are also not cure. Liver keeps suffering most of the time. I know first sentences may break