After Kasai

[Edwin184]

My baby had Kasai on may 11 2020.He has one episode of cholongites.now his blood values are going down.bilirubin is 1.7.yesterday he admitted in the hospital with fever the blood values are almost same.they did ultrasound it's show's there is some fluid collection in the surgical site.anybody have any experience.we are so worried plz let us know

Thanks

[Thomas2]

Bilirubin level less than 2mg/dl within 3months of Kasai is considered as successful Kasai surgery, for cholangitis they will give IV antibiotics for 2weeks...

[lynguyen]

Hi Edwin, my baby also had kasai on 5/18/20. We are in the hospital now for the first episode of cholangitis 😞, only symptom is fever. She is on IV antibiotics. Our little one bili is now .5, like u we are so worry and praying she is ok as the road ahead of us is so rough. Praying for your little one !

[PowerOfAnEagle in reply to lynguyen]

Yes the Road ahead is tough but it only makes us parents stronger to be their for our kids. my son had 2 episodes of cholangites thankful it hasn’t happen again. His now waiting for transplant but it’s been a rough few months a lot of ups and down. Praying for you baby things will get better. Any questions feel free to ask anytime.

[PowerOfAnEagle]

I’ve experienced episodes with cholongites 2 times my son was admitted to hospital with fever and they put him on antibiotics For a week.

[Keshraj1971 in reply to PowerOfAnEagle]

How’s your son now ?? Which kind of antibiotics they give him and please tell me the dose as well

[PowerOfAnEagle in reply to Keshraj1971]

My son is doing good thank his he hasn’t got no more infection since the last one in April.

I won’t be able to tell you the name of the antibiotics cause it was in the hospital I just know it’s to strong to gave at home . They gave it for about a week.

[Keshraj1971 in reply to PowerOfAnEagle]

Do we need to increase the dose of antibiotics according to baby weight ...

please tell me as I confused

[PowerOfAnEagle in reply to Keshraj1971]

Are you talking about the antibiotics they take everyday at home at a day to day basis.

[Keshraj1971 in reply to PowerOfAnEagle]

Yes

But my baby admitted to hospital 3 time because of fever within 2 months after kasai . Any suggestions please

[lynguyen]

Good to hear your son doing ok for now. I hope he gets his transplant call soon. Praying for your little angel. Where are u located?

[PowerOfAnEagle in reply to lynguyen]

Thank you appreciate it tons.

We are located in Florida.

How is your daughter doing is she doing better.

[lynguyen in reply to PowerOfAnEagle]

Thanks! My daughter is doing ok for now. Still have high enzymes numbers but expected. It is so sad seeing our kiddos go through this!

[PowerOfAnEagle in reply to lynguyen]

Yes it is sad but this just makes our gets stronger then what they are and us the parents as well.