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British Liver Trust

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All posts for January 2024

What happens after the liver referral?

The blob on hubbys kidney has disappeared which means that he has been referred to Birmingham QE to see a heptologist. Today we received an outpatient app...

The blob on hubbys kidney has disappeared which means that he has been referred ...

Snips71

•4 months ago

16 Replies

Coffee alternatives?

Sooo, finally had my outpatient appointment. Was told by the consultant that drinking 2-4 cups of coffee a day would be very helpful. Alas, I am proper...

Sooo, finally had my outpatient appointment. Was told by the consultant that dr...

DinoGal

•4 months ago

4 Replies

I don't know what to do

Hello everyone, my partner has been drinking for 8years. He was diagnosed with decompensated liver cirrhosis, he is showing signs of HE, has swollen ankles and...

Hello everyone, my partner has been drinking for 8years. He was diagnosed with d...

Hithereeveryone

•4 months ago

13 Replies

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First venesection done!

Hubby had his first venesection treatment today. He was diagnosed with hereditary haemochromotosis in October and at point of diagnosis his ferritin levels...

Hubby had his first venesection treatment today. He was diagnosed with hereditar...

RugbyMama

•4 months ago

2 Replies

Nodular Contour

Good Morning - has anyone ever had a "nodular contour" or "minimal irregularity at the subscapsular area" show up on an ultrasound and then go away? I had it...

Good Morning - has anyone ever had a "nodular contour" or "minimal irregularity ...

Confused2024

•4 months ago

27 Replies

Good morning ❄️

Hope everyone's keep themselves safe with this snow/ice.Just a quick question regarding high protein meal drinks. I know asking my dietitian would help but...

Hope everyone's keep themselves safe with this snow/ice.Just a quick question re...

DaniellaJayMay

•4 months ago

16 Replies

please some help here, end stage liver cancer.

Dear BLT people, I hope you are all doing reasonably well. After my story 1.5 year ago about my misdiagnosed liver cirrhosis its kind of weird to say...

Dear BLT people, I hope you are all doing reasonably well. After my story ...

Jimmy777

•4 months ago

43 Replies

MRI with contrast

I have a scan every 6 months no problems, this week had scan that night unbelievable aches and pains and restlessness didn’t sleep a wink. Next day all back to...

I have a scan every 6 months no problems, this week had scan that night unbeliev...

oap74

•4 months ago

1 Reply

Mr tillysid

Does £400 sound a lot for a Fibroscan

TillySyd

•4 months ago

26 Replies

Elevated ELF but 'normal' Fibroscan pressure - how?

Hi All: I'm a 50-something male with a fatty liver. Recently I was given an ELF test and it returned a result at the lowest end of the 'severe fibrosis'...

Hi All: I'm a 50-something male with a fatty liver. Recently I was given an ELF...

_liver123_

•4 months ago

8 Replies

Severe Fatty Liver

Hi, I have just diagnosed with severe fatty liver. Nurse told me it's grade 3. I have searched Google and its shows that this stage is irreversible and I may...

Hi, I have just diagnosed with severe fatty liver. Nurse told me it's grade 3. I...

SShally

•4 months ago

16 Replies

polycystic liver disease

I have diagnosed with Polycystic liver disease for years and then no. and size of cysts have increased after giving birth. The largest one is 11cm and my...

I have diagnosed with Polycystic liver disease for years and then no. and size ...

LGBS

•4 months ago

1 Reply

Can you live longer than 20 years with cirrhosis

18 years ago I was very ill with Hepatises/cirrhosis. Since then I have done ok. I have portal hypertension but no varices. Occasion fluid retention in my legs...

18 years ago I was very ill with Hepatises/cirrhosis. Since then I have done ok....

1of5

•4 months ago

29 Replies

Spider Nevis, does anyone else have these?

Short story, hospitalised over a year ago with jaundice and ascites due to alcoholism, considered de compensated cirrhosis, original fibro scan read 22.2kpa,...

Short story, hospitalised over a year ago with jaundice and ascites due to alcoh...

Grassroots112

•4 months ago

8 Replies

LFT Results - Help

I have had some tests done recently and I was expecting the liver would be an issue. I have been a heavy drinker for quite some time. I had full bloods done...

I have had some tests done recently and I was expecting the liver would be an is...

Trr1985

•4 months ago

5 Replies

Memory

Hi My wife has AIH B of the liver and is taking 3mg of corticosteroids per day. We have noticed a decline in memory over the past few years we have visited...

Hi My wife has AIH B of the liver and is taking 3mg of corticosteroids per day...

ShevBoy

•4 months ago

1 Reply

Pain following fibroscan

Hi went for a fibroscan on friday .. the nurse struggled to get reading but kept trying.. diagnosed with liver cirrhosis.. since then i have very bad pain...

Hi went for a fibroscan on friday .. the nurse struggled to get reading but kep...

Jender58

•4 months ago

4 Replies

Most know the story. Something I can't figure out.

Most people here know my wife's story and went to the hospital with Eshauphageal erosion, but a typo on her Chart (Fibrosis vs Cirrhosis) had a dramatic...

Most people here know my wife's story and went to the hospital with Eshauphagea...

ceward204

•4 months ago

10 Replies

Mr Alan M

I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I...

I have been missed diagnosed with liver disease for years I believe that I am st...

TillySyd

•4 months ago

11 Replies

Best package I've received in a while.

So since I've found this amazing forum and with all the help from liver trust, I've put myself, partner, father and friends down to do a trek and decided to...

So since I've found this amazing forum and with all the help from liver trust, I...

DaniellaJayMay

•4 months ago

8 Replies

1st consult questions to ask please

hi, please can someone guide me on which questions to ask? My brother has got his first appointment at Leeds liver Unit next week. He’s got Class C liver...

hi, please can someone guide me on which questions to ask? My brother has got hi...

MrsAlien

•4 months ago

10 Replies

advice re poor sleep pattern

Hi my husband was diagnosed out of the blue with alcohol related liver cirrhosis exactly one year ago today. He hasn’t had a drink since and has lost 4 stone...

Hi my husband was diagnosed out of the blue with alcohol related liver cirrhosis...

lynnie0369

•4 months ago

19 Replies

confused

recently diagnosed with cirrhosis, consultant wasn’t very clear and how bad it is, only that I have to get bloods re-done as afp levels are quite hi. Back for...

recently diagnosed with cirrhosis, consultant wasn’t very clear and how bad it i...

Recentlydiagnosed-

•4 months ago

18 Replies

Fibroscan reports

Hello all, I did my fibroscan and blood work done today I had a ultrasound 6 months back that suggested mild heaptamology with grade 2 fatty liver I had had...

Hello all, I did my fibroscan and blood work done today I had a ultrasound 6 mo...

Mythjn

•4 months ago

10 Replies

At last, a review appointment

Fiiinnaallyyy, I have got an appointment to see the consultant for a review/explanation. Only 16 months after diagnosis!!! My liver kicked off just before...

Fiiinnaallyyy, I have got an appointment to see the consultant for a review/expl...

DinoGal

•4 months ago

1 Reply

elevated Liver Enzymes

Hello, I am in need of advice. I have had mildly elevated liver enzymes and can’t figure out the cause of it. I have been tested for everything and anything...

Hello, I am in need of advice. I have had mildly elevated liver enzymes and can...

Lresinger

•4 months ago

8 Replies

Thoughts?

Hello, Decided to ring the liver trust nurses today . I spoke to a lovely lady who went through stuff with me but as she said didn’t know my medical details...

Hello, Decided to ring the liver trust nurses today . I spoke to a lovely lady...

Etymolog

•4 months ago

5 Replies

decompensated cirrhosis

hi I was diagnosed with decompensated cirrhosis in march , I have quit alcohol since but and had scan last month, my next appointment is 6 month time, is this...

hi I was diagnosed with decompensated cirrhosis in march , I have quit alcohol s...

Kingbilly3

•4 months ago

31 Replies

First Overseas Holiday post liver transplant

I am about to go on my first overseas holiday since having a liver transplant 12 months ago, I will be staying with family who have 2 dogs. Grateful for...

I am about to go on my first overseas holiday since having a liver transplant 12...

TripleCrown

•4 months ago

5 Replies

Gastro Appointment

hi everyone, I promised I would update you after my gastro appointment, there is not a lot to say really, he told me the past ct scan showed diffuse fatty...

hi everyone, I promised I would update you after my gastro appointment, there is...

Sophia1968

•4 months ago

13 Replies

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Posts - British Liver Trust | HealthUnlocked

British Liver Trust

All posts for January 2024

What happens after the liver referral?

Coffee alternatives?

I don't know what to do

First venesection done!

Nodular Contour

Good morning ❄️

please some help here, end stage liver cancer.

MRI with contrast

Mr tillysid

Elevated ELF but 'normal' Fibroscan pressure - how?

Severe Fatty Liver

polycystic liver disease

Can you live longer than 20 years with cirrhosis

Spider Nevis, does anyone else have these?

LFT Results - Help

Memory

Pain following fibroscan

Most know the story. Something I can't figure out.

Mr Alan M

Best package I've received in a while.

1st consult questions to ask please

advice re poor sleep pattern

confused

Fibroscan reports

At last, a review appointment

elevated Liver Enzymes

Thoughts?

decompensated cirrhosis

First Overseas Holiday post liver transplant

Gastro Appointment

Search posts

Pinned Posts

Latest poll

Where are you joining us from?

Topics

Archive