Shielding

[jules45]

Hi everyone, hoping your all coping with your illness or diagnosis and all it brings. I've had a nasty spine fracture for 5 weeks but urgent surgery is not an option due to being end stage. To all of you covo is frightening and I imagine most of you including myself will be free on Sunday 16th. I haven't seen the light of day since March and spent my 50th alone. Just to wish you all a safe daily life. I've employed a personal assistant to take me out. As my fracture prevents me from driving and walking she will use my car and push me in my wheelchair and as I have atelectasis left lung I have my oxygen. From the bottom of my heart I wish you all my love and support as you've wished me over the years. Life wont be the same but we can give it our best

Love and prayers to you all julie xxx

[broomhall79]

Hi jules

Thank you for your lovely and heart felt post. Once again such inspiring words its 4 AM and something said look at your phone and bless your name was there I couldn't possibly go back to sleep without writing a reply ! To say how brave you are and what a worrier you really are I've only ever seen another post of yours because I very rarely come to this site as it made me worry about my own illness until I read 1 of your posts and thought here's me worrying when this lovely woman has end stage cirrhosis is in so much pain yet but still had and found time to write messages to give people hope and to not give up. I just wanted you to know that your post has made me see a different perspective on life and to come back on here and read peoples stories and answer them and help them if I can and to touch people's hearts as you touched mine your always in my prayers

Thank you jules keep fighting x😉🥊

[jules45 in reply to broomhall79]

Thankyou for your lovely message, I came off here for a while as there was quite a difference of opinion between 2 members and it dragged me down. I'm back now for different people to speak to as noone around me understands. I always get the comment "your alright, the liver repairs itself". Yes it does to a certain stage. I still bury my head in the sand but that's how I cope. I don't judge anyone as to how they got their liver disease, drink, overweight and all the other reasons. The NHS are still investing in me which helps. I shall keep posting

Xxxx julie

[Hidden]

Hi

Lovely to hear from you again, and your fantastic spirit. I am sure your message will show many people how to cope in these tough times

My thoughts and prayers are with you and hope you can get the best you can out of each day

I wish I could do more and find the right words to help you

I will light a candle today and think of you

Best wishes

David

[jules45 in reply to Hidden]

Hi David, that was a nice message to read. I was decomposite November 2019 and they were just waiting for my heart to stop in A+E, . Survived the night and went to ward and eventually had 8 litres of abdominal fluid drained with a drip of albumin every 3 litres. After that I thrived and lost 4 stone quite quickly. Last month out of hours doctor came as I couldn't breathe and scored high for sepsis. My sats were 75. Liver affected again. Now I have protein sachets, oxygen in 2 rooms and just had portable oxygen. How are you getting on with your health, you must let me know. Your message was very kind just ĺike David's and my candle will shine bright for you

Xxxxx julie

[Hidden in reply to jules45]

Hi

I got to within three weeks of the final act and got a transplant.

I have my life back again now, not perfect but vary good

It makes me feel guilty, I wish I could make it happen for you!

David

[jules45 in reply to Hidden]

Oh David, please don't feel guilty, it wasnt my turn so even though I have many ailments, breaking my back in 5 places in corfu then July a whopping fracture just getting out of my hospital bed, after MRI I had a back brace. Waiting for injections for pain in back, and ct on lungs on 28th so I can walk carefully around my bungalow. Also I've hired a personal assistant to take me where I choose in my car with wheelchair saving me 45p a mile in her car. I'm looking forward to going out next week. I may be able to drive by xmas. Your messages lift my spirits so thank you xxx

[Hidden in reply to jules45]

Julie

That's all good, small steps are all good, I understand a little I was unable to do much at all for 8 years constant tiredness aches HE loosing days at a time and the dam itching.

We named all the birds in the garden slept through years of deal and no deal, never knowing who won! (Maybe that was an advantage)

I really hope you continue to improve and Christmas sees you driving

I have no excuse not to cut the grass, and up to covid go shopping, being in shielding was at least something I was used to.

Have a great weekend, PM me anytime if you want a chat

David

[Hidden]

You are inspiring and courageous. You give others the strength to carry on.

It is humbling to read your post.

Stay safe

[jules45]

Thank you trust5. A lovely message

Julie xx

[alfredthegreat]

Hi Julie,

I wish with all my heart that I could make things right for you.

You are one very brave lady and certainly an inspiration to all of us.

I too feel very humble when reading your posts and at this moment I am at a loss for more words to say.

Just know that I am thinking of you.

Alf X

[FlyingArrow]

Jules

It not very often these days that I read the forum messages so late but I'm glad I did tonight!

Your message to those of us reading is not only an inspiration to myself but to others members struggling from day to day!

Thank you again for being who you are! I shall be praying for you

FlyingArrow x

[Wass71]

Hi, so lovely to see you posting. I'm glad that with all your struggles you are remaining as positive you can. It shows how having a strong spirit, one can keep going, against the odds.

I'm glad you've found a way to get out and about, being outside certainly helps me, as it does many others.

I'm sending positive thoughts, in the hope that your back recovers quickly, and the pain injections help.

As you've said, no matter what the cause of this disease, it is something which affects the body in devestating ways. Being strong, fighting and trying to make the most of what we have is so important, and you show us all that it's possible to do that.

Thinking of you,

Take care and enjoy a bit of freedom again!!

Wass x

[FlyingArrow in reply to Wass71]

Lovely reply to Jules👍

FlyingArrow x