Hi everyone, hoping your all coping with your illness or diagnosis and all it brings. I've had a nasty spine fracture for 5 weeks but urgent surgery is not an option due to being end stage. To all of you covo is frightening and I imagine most of you including myself will be free on Sunday 16th. I haven't seen the light of day since March and spent my 50th alone. Just to wish you all a safe daily life. I've employed a personal assistant to take me out. As my fracture prevents me from driving and walking she will use my car and push me in my wheelchair and as I have atelectasis left lung I have my oxygen. From the bottom of my heart I wish you all my love and support as you've wished me over the years. Life wont be the same but we can give it our best
Love and prayers to you all julie xxx
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jules45
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Thank you for your lovely and heart felt post. Once again such inspiring words its 4 AM and something said look at your phone and bless your name was there I couldn't possibly go back to sleep without writing a reply ! To say how brave you are and what a worrier you really are I've only ever seen another post of yours because I very rarely come to this site as it made me worry about my own illness until I read 1 of your posts and thought here's me worrying when this lovely woman has end stage cirrhosis is in so much pain yet but still had and found time to write messages to give people hope and to not give up. I just wanted you to know that your post has made me see a different perspective on life and to come back on here and read peoples stories and answer them and help them if I can and to touch people's hearts as you touched mine your always in my prayers
Thankyou for your lovely message, I came off here for a while as there was quite a difference of opinion between 2 members and it dragged me down. I'm back now for different people to speak to as noone around me understands. I always get the comment "your alright, the liver repairs itself". Yes it does to a certain stage. I still bury my head in the sand but that's how I cope. I don't judge anyone as to how they got their liver disease, drink, overweight and all the other reasons. The NHS are still investing in me which helps. I shall keep posting
Xxxx julie
Hi
Lovely to hear from you again, and your fantastic spirit. I am sure your message will show many people how to cope in these tough times
My thoughts and prayers are with you and hope you can get the best you can out of each day
I wish I could do more and find the right words to help you
Hi David, that was a nice message to read. I was decomposite November 2019 and they were just waiting for my heart to stop in A+E, . Survived the night and went to ward and eventually had 8 litres of abdominal fluid drained with a drip of albumin every 3 litres. After that I thrived and lost 4 stone quite quickly. Last month out of hours doctor came as I couldn't breathe and scored high for sepsis. My sats were 75. Liver affected again. Now I have protein sachets, oxygen in 2 rooms and just had portable oxygen. How are you getting on with your health, you must let me know. Your message was very kind just ĺike David's and my candle will shine bright for you
Oh David, please don't feel guilty, it wasnt my turn so even though I have many ailments, breaking my back in 5 places in corfu then July a whopping fracture just getting out of my hospital bed, after MRI I had a back brace. Waiting for injections for pain in back, and ct on lungs on 28th so I can walk carefully around my bungalow. Also I've hired a personal assistant to take me where I choose in my car with wheelchair saving me 45p a mile in her car. I'm looking forward to going out next week. I may be able to drive by xmas. Your messages lift my spirits so thank you xxx
That's all good, small steps are all good, I understand a little I was unable to do much at all for 8 years constant tiredness aches HE loosing days at a time and the dam itching.
We named all the birds in the garden slept through years of deal and no deal, never knowing who won! (Maybe that was an advantage)
I really hope you continue to improve and Christmas sees you driving
I have no excuse not to cut the grass, and up to covid go shopping, being in shielding was at least something I was used to.
Have a great weekend, PM me anytime if you want a chat
David
You are inspiring and courageous. You give others the strength to carry on.
Hi, so lovely to see you posting. I'm glad that with all your struggles you are remaining as positive you can. It shows how having a strong spirit, one can keep going, against the odds.
I'm glad you've found a way to get out and about, being outside certainly helps me, as it does many others.
I'm sending positive thoughts, in the hope that your back recovers quickly, and the pain injections help.
As you've said, no matter what the cause of this disease, it is something which affects the body in devestating ways. Being strong, fighting and trying to make the most of what we have is so important, and you show us all that it's possible to do that.
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I want to thankyou all.
Here goes.
Ignorance is Bliss....?
I've been out celebrating 
