Apparently the definition of this is 'if one is unaware of an unpleasant fact or situation one cannot be troubled by it'
I often wonder how my life would have been if I had never found out I was poorly, would my illnesses have gone un-diagnosed for years, would I have been in ripe old retirement before I knew....I do sometimes think I wish I had never been told. Just go back to being me.
Crazy isn't it the change you have to go through in your life to make adjustments for an illness you promise yourself wont affect you. I do remember saying in the very beginning this illness will not define me, it will not control me.....it does, it dictates my mood, my actions, my feelings, what I can and can't do throughout the day, dictates when I eat and what I eat for that matter, ensures I rattle when I walk from all the tablets. Gives me pain everyday, even changes how I sleep (or don't) stupid illness....although I am sure just like you all I put a brave face of things and don't ever let on to anyone how crap I am really feeling - except for you lovely lot obviously! I can always count on you to keep my secrets, especially my infatuation with cake!
So my spleen is as you all know too big, unsafe and very much making me uncomfortable, I am about to go to the shops and get either a bigger size in trousers or I am getting in to the maternity ones, although I think that maybe a slippery slope to wearing my joggers to work! ha who cares if I am comfortable right - not sure the CEO will think that at tomorrow mornings meeting! lol....
Anyway, I had a lovely walk along the beach this weekend I do love living so close to the water, I wanted to share my lovely day with you all so you can imagine your were there with me (not steeling my cake)...
I hope you are all well and coping best you can xx
Written by
Chelle_
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What a lovely thought, living close to the water. Good to see you focusing on the positive given your illness and symptoms. It's hard seeing a normal life when feeling like you do and the call from the coordinators to say they have a liver for you seems like a distant memory. It will happen and your new liver will come, not if but when it does you will reflect on these times with a soft smile and give yourself a pat on the back for getting through the difficult times. I remember buying elasticated waist trousers to accommodate my forever ascities and baggy tops that made me look pregnant. (I'm 60!!!!!!!). My husband used to say.. "Hold on tight" . We are just driving home from a hospital check up, I am 14 weeks post transplant and all is fine. Sending a hug. Wendy
Thanks Wendy for the response. I hope you continue to get better and you no longer have use for your baggy tops (I know a good home if you want to deposit them) lol....My biggest struggle is that I am a qualified personal trainer, I love sport, whether watching or taking part, I have always been conscious that I am not the smallest of people and very aware of my sweet tooth so used fitness as my get out of jail free card...however I am band from fitness as I have blood clots so what used to be my outlet is no longer something I can turn too.
Anyway as you say, my call will come one day and I'll probably have a melt down ha ha!
Keep well!
I like the sound of the, "walking along the beach" Chelle, and that picture makes it seem so nice, tranquil and calm. Some how, "there I was walking along the beach picking up discarded plastic bottles and coffee cups", doesn't have the same serene effect.
Thanks for sharing Chelle and I'm sorry your having to feel so bad. What can anyone say? I guess the only thing that comes to mind is those famous words supposedly spoken by Marie-Antoinette, “Qu'ils mangent de la brioche”—“Let them eat cake.”
Oh so very true Chelle .. oh so true ... well, hopefully you get in soon and hopefully it is all worth the wait and the cursing and the changes! Glad you enjoyed the walk, I try get our with George (Welsh Spaniel) as often as possible, but even at 8L O2 a min, it is a struggle, not that I am out of breath, just not doing the body any good!
Well put sometimes I wish I could back up and figure out all The Who the what the where and the when I got this Hepatitis C and run the other way. Funny you mentioned cake I have a new neighbor and she bakes all the time so being the single guy, I get a lot of extra’s just the other day I got gingerbread cookies and a 1/2 strawberry and 1/2 chocolate cake. I would like to think that this illness is a gift and maybe through experiments or whatever I can help be part of the cure. My spleen has reduced as did pretty much everything once I got on the Rifaximin and Lactulose not sure if there is a reason or just timing. But I’ll take it , still can’t breathe which next week I will begin testing for this with a pulmonary specialist again, maybe I’ll get some more sweets to eat. Have a good day, I don’t know how you get up and go to work, congratulations to you, I believe I would have created mayhem and and gotten myself fired quickly.
What a lovely picture, thank you for sharing. I agree with you Chelle _. I also have to buy bigger sizes, consultant said it's not ascites but e very enlarged liver and spleen. I wish I could go for kind walks but my feet are so painful, plantarr fasciatus, capsulitis, ball and too of foot, a podiatrist is trying to sort me out!!! Please take care, sending lots of hugs your way xxxx
Oh Lynne, I hope your podiatrist manages to ease your pain soon - neither of those are nice. Soaking your feet in warm bowl of Epsom salts can be a great help, with draws toxins! Feel better soon!
Such nice thoughts. On top of all my downs and a few ups (ice cream) we are being forced to move in 30 days. So my body and brain are not coping now but we are moving to a beach funnily enough. It’s called Yorkeys Knob. Stop laughing, it is a real place. Google it. Lol.
Lol....I googled it it looks lush! I am jealous. I live in a place called Hayling Island right at the bottom of the UK we have one bridge on and off the island - we will all have to don our bathers if the bridge ever goes down! lol...
At least I don’t need thermal bathers to go for a swim lol. I just need to look out for crocodiles, jelly fish, venemous snakes, stingrays etc. who said living in the tropics was easy haha
Hope you are feeling better soon and that your move goes smoothly.
I think I'll have to take Queensland off my list of places to retire to - living in the U.S. Maine mostly now Minnesota - too many things that would be happy to kill me there and I'm too used to the lack of those here. I'm worried about moving more south where they have more "ickies".
Best wishes to you.
Mary
Thank you Chelle_. I've also got fibromyalgia and a multitude of other things too!!
How are you this morning? Thank you for all your support. Take care . Lots of love Lynne xxxx
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Treatment 😄
Follow up consultantation
Raised GGT and ALT levels
Mental health 
