Not a hope in hell: I HAVE BEEN... - British Liver Trust

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Not a hope in hell

Faithfull profile image
6 Replies

I HAVE BEEN DISCHARGED TO DRS SO NOW .WHAT

THE WHOLE SYSTEM IS A DISGRACE I AMNOW LEFT TO FASE INTO NOTHING AND CANNOT BELIVE I HAVE COMORBIDITYS TO MANY THINGS WRONG ON GASTRIC TABLETS HEART NOTHING FOR MY SPINAL STENOSIS ARTHRITIUDS STOMACH BLOATING SEVERE PAIN IN MUSCKES BONES TWISTED IN GANDS SKIN BLEEDING WITH ITCHING CONSTIPATION THEN ITS LIKE WATER NO SEX DRIVE HPV HIP REPLACEMENT LEFT TO LONG HANDS FEET SWOLLEN CONTIONUSLY FEEL SICK CONFUSED IF ITS SANE DAY OR WHAT YEAR INSOMNIA AGRRESIVE CRYING LIVER PAIN SPLEEN PAIN I AM TO TIRED TO FIGHT TO WAIT FOR GP TO PHONE TO SEND ME CASULTY 6hours later blood ok home even sent miles away as a/e to busy cannot go on being told bull I am having stabbing pains in top half under ribs constipated in several places had passing of gall stones before pains getting bad it's been 3months of continuous not well I'm to not well to fight to see GP as they never get hospital letters so that's that I feel like calling the police as that's what happens if we think we're being mentally ill that's the crisis team after 4years of cris nothing nothing n/a so I decided that only me can help me so god help me as I have in life bit to much to handle I cant

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Faithfull
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6 Replies
cazer profile image
cazer

you sound like you've got h. e.???

please try once more to get help. xx

Faithfull profile image
Faithfull in reply to cazer

I have mental health problems but this is weird I never experienced this its like ground hog days and I'm getting so ill

lovetocreate profile image
lovetocreate

Never never ever give up!! We will all be praying for you!! 🙏🏻🙏🏻💕💗

I am sure we all on this forum, hope you have got the medical help you need and are feeling better. Despite odds being difficult to seemingly overcome it mostly gets better, with a few bumps perhaps in the road along the way. I know as was suddenly ill with failing liver, jaundice and Ascites, possible confusion due to liver failure, needed blood tranfusion, having nose bleeds, bruising, bed bound.unable to eat or dress myself..assessed for transplant whilst very ill plus a terrible skin itching and rash which burned .. it was hell on earth...but by avoiding anything which inflammes a poorly liver, i.e. alcohol, pain killers, being open with medics, and patient to let them do their best, I now do not need a transplant and my symptoms are( at least at the moment) under control, no Ascites, improving Liver Function Blood tests. Mainly have problem sleeping and constant fatigue and muscle pain - a small price to pay for being alive 1 year after nearly dying. Please keep faith, Faithful. Put yourself in the hands of the experts, and if anything doesn't seem right, keep asking them or get other opinion. I am about to get married have my non alcoholic bubbly for the reception (feel no urge to drink alcohol since my poorly Liver was diagnosed), and go on a honeymoon to Costa Rica! Bit scary - all the travelling...but will keep taking the drugs prescribed and accept I will be tired for a day or two. BTW anyone else with End stage Alcohol related Cirrhosis managed to go away for long holiday, I would appreciate any tips. What I am trying to say is, be patient, get the medical intervention and likely as not things will get better. xx

Faithfull profile image
Faithfull in reply to

I'm sorry if I offenended you and everyone I'm sorry

Hello Faithfull, nice to hear from you, hope you are ok. You certainly said nothing to offend anyone so don't worry x All the best.

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