That was great. You say you did it at three am. I bet that if you worked on it every night you couldn't sleep that it could be something that gets posted for all to see on different liver websites. You would be famous!!
Infuriating isn,t it? Day 5 of no sleep for me too, Wk 10 of hep C treat and gone from snoozing and no energy to no sleep and no energy! We cauld discuss politics or religion!!!! anne
ditto, used to use valerian but told no herbal rems cuz of doggy liver. so desp for sleep rang out of hrs service told by polish guy to eat slice of bread ! anne
Hi, same here and the usual "you'll be ok as the Liver regenerates itself". When you have serious cirhossis things are different. Your right, we don't have it easy, when you have days feeling like you have flu, and a new diagnosis of something else is wrong just when you think it can't get any worse,that's why your poem cheered me up.My neighbour told me to start eating meat again (been veggie for 10 years) and I will be better. Lol
Even though ive been told i will need a txplant most people yhink its a piece of cake.im concerned about being eligible in the first instance then if i get on the list its a risky buisiness isnt it.
There are a couple of my friends that are a bit more understanding but most people havent got a clue.
As you say let alone that cirrhotic livers wont fix themselves
Im not sure where the myth about livers fixing themselves came from ,i know some mild damage will heal but the rest is rubbish isnt it!!!
Do you have pbc or another l disease if you dont mind me asking ? Where are you with it?
Hi jules sorry that was probably a bit personal.perhaps i should have left the pbc line out as i think it probably suitable for all liver disease.
Maybe i could do spevific ones for each tupe as i sure they must all.have there own individual challenges.
Yes i know im getting carried awayi know im not poet laureat(is tjat how its spelt?)ha ha!!
I did read your profile as i think we may have talked before?
I too love pottering in the garden if the energy allows but get very frustrated that i cant did the holes.we have been in this house 7yrs and its a new build ...and i put too many plants in ...well.my hubby did on my instruction....now evrything has grown amd i have a jungle but i love it really
Hopimg for sun to do a bit of chopping back
From one dodgy livered gardener to another best wishes.x
HI,yes we have spoken before. My diagnosis is cirhossis and last week another diagnosis of neuropathy. Yet more tablets to add to the 13 per day! My garden is very autumn now. Dead heads everywhere, in nèed of a good prune and wèeding. Like you I'm waiting for the word transplant to be mentioned at consultation. Probably living on a third of my liver now. What are you up to today. Sun is shining but don't feel like working outdoors
Hi ive been pretty incapacited for the last nearly 18 yrs and just this last 6months my ukeld has reached 51.
My bilirubin has started to rise and albunin and platelets dropping......2 visits ago they said i would prob b put forward for listing within the yr ..not sure if that meant this calender yr or within a yr.
Anyway this visit he said you definately will need a txp but we'll review in 3months..so here i am playing the waiting game just hopong im well enough to get on list as this is my latest fear.
Im sorry youve had no mention of listing i understand the frustration completely.
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