Hoping for a Better 2022: Hi Everyone... - Blue Faery Liver ...

Blue Faery Liver Cancer

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Hoping for a Better 2022

DancingEyes63 profile image
DancingEyes63ModeratorCaregiver
14 Replies

Hi Everyone. Hope everyone had a Merry Christmas and a Happy New Year. Jimmy and I spent a quiet Christmas at home, just the two of us. We sat up until 3 am on Christmas Eve just talking. Best Christmas ever, without any presents. We spent Christmas Eve listening to Christmas music (which I love and Jimmy hates) and making fudge, baking pies, and other Christmas goodies for family and friends. Christmas Day we dropped off our goodie bags. Jimmy had his second Opdivo immunotherapy infusion the Tuesday after Christmas. Didn't seem he was as fatigued this time. We worked outside finishing up my Green house and some other outdoor projects. New Year's Eve, he spent the afternoon resting so he'd feel like taking me on our date. We went to our favorite restaurant and had some delicious Mexican food. Our small town's downtown area is built around the courthouse in a square. The restaurant is right across from courthouse so when we finished eating, we walked over to the square. It was so pretty, all decorated for Christmas still including the big Christmas tree. Jimmy had promised me that we'd dance to our song on New Year's Eve. He had brought his Bluetooth speaker with him so he could play our song. We danced there on the pavement in front of the Christmas tree in the center of the square to Tupelo Honey by Van Morrison. Traffic passing by, people walking around looking at the lights and visiting the restaurants, stores on square. We danced for the entire almost 8 minutes of the song, including spins and twirls. He had to use his cane to walk to restaurant and to walk to square but he didn't need it to dance. Tears in my eyes the whole dance because it was such a wonderful moment, so filled with love. He said he wanted me to have a New Year's Eve that I'll always remember. We got home about 9 pm, fell asleep until midnight, woke up and ate chocolate ice cream to ring in the New Year. Then on New Year's Day, I cooked black eyed peas, corn bread and collard greens and visited a friend to share our meal. I pray that this treatment gives us more time and we have more New Year Eves to celebrate but I'm realistic enough to know this may be our last one. Praise God we were able to make it such a special one.

Years ago, right after I filed for divorce from my previous husband, Jimmy took me on our second date to our town's 4th of July Celebration at that same square. He paraded around with me on his arm in front of whole town so everyone would know we were 'he-ing and she-ing" as he called it. Jimmy said it just felt "fitting" that we danced our New Year's Eve dance on the square.

He has to go for blood work next week and then sees the Dr on the 11th to discuss how the Opdivo is working. No matter what, nothing can take away the wonderful memories of this holiday season.

Sharon 💖🥳

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DancingEyes63
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Wifey2021 profile image
Wifey2021Caregiver

Thank you for sharing your holidays. Our Christmas and New Years were filled with kids, grandkids, good food and football. I took a lot of pictures. Y-90 mapping to take place on January 13. I am fearful that my “healthy” husband will become sick with the upcoming treatments, and our lives will completely change. I am already planning where we will need grab bars. We will take one more short vacation before the procedures. God bless us all in 2022.

Curly_Girl profile image
Curly_GirlCaregiver in reply toWifey2021

I will keep you in my prayers for the Y-90. I felt the same way each time Dave went in for a treatment or switched medication, He never did have a dramatic reaction to anything, just small side effects that were managed with medication or things he decided to try (for example, he used to drink chia seeds soaked in water to manage diarrhea/stomach issues and it solved that problem for him). Always remember there is a team ready to help out with these things, if necessary.

Enjoy that vacation, what a fabulous idea!

Wendy (in cold, snowy Michigan)

bwpickard profile image
bwpickardCaregiver in reply toWifey2021

Enjoy your vacation and know there are prayers going up for great response to Y90 ….which my husband had with minimal side effects…we were apprehensive also and relieved and thankful that he responded so well, had a little nausea easily managed with anti nausea med and it quickly resolved.

Curly_Girl profile image
Curly_GirlCaregiver

A beautiful way to celebrate the holidays - truly wonderful! I can't tell you how happy I am that you had these celebrations together, and I hope with all my heart that you will be sharing many more times like these. You guys know how to do it right! Hugs and love to you both!

Beautiful! Today Is my first Therasphere placement! My wife is in the hospital, she is ok, just some minor ailment! Prayers for us all! Amen

Curly_Girl profile image
Curly_GirlCaregiver in reply to

Wishing you both all the best, Bill! Please update us on how you're doing after the Y-90. 🙂 You know I'll be praying for you, my friend!

Wendy

bwpickard profile image
bwpickardCaregiver in reply to

Hope your wife is home soon and that all goes well with your Y90!!! My husband had such a dramatic response to it that I will be forever grateful for! Praying for you!!!

bwpickard profile image
bwpickardCaregiver

What a beautiful celebration and memory maker! You two are making every moment count. Praying for great response to treatment with minimal side effects!!!❤️

Day after. Doing well. No real pain. Some strange feelings. The meds to stop Nausea and such are working. They went through my left wrist not the groin. The next one Feb 3rd will be the groin. Then the next three month wait for the next scans to see how well this has done. We can have only two Y-90 treatments per tumor. Then after that, well I ain't going there. I think this first one will be ok. Praying for us all! Amen

Wifey2021 profile image
Wifey2021Caregiver in reply to

Good to hear you are doing so well after Y90! Do you have to stay isolated from everyone?

in reply toWifey2021

No. Just need to stay two feet away. This radiation does not travel far at all. Cannot hug my cats and they are rather upset about that. No kids in the lap but you can hug em. I am really impressed by this whole process. I can go to the Hospital to see my wife today. She had surgical repair for a bad feeding tube implantation and a chest tube for plural sac fluid removal. She fought Squamous Cell Carcinoma of the lower right jaw for the past three years. She is cancer free! This was a blessing because she does not need to be in the house right now. She may come home tomorrow.

Pikapink profile image
PikapinkCaregiver

omg...I'm so happy for your beautiful Christmas. I wish you both a blessed and Happy New Year as well as the best results with your husband's treatment.

AndreaWilson_Founder profile image
AndreaWilson_FounderPartnerEditorCaregiver

Dear Dancing Eyes,

This is the most beautiful story. So touching. If you and Jimmy ever want to share your story (together or separately) on the Cancer U Thriver podcast (podcast.cancer.university), please let me know. Cancer U is my other company; it's a health tech startup. You can learn more here: cancer.university/share-you...

So, so beautiful. 💙

~Andrea

For you! youtube.com/watch?v=ZnaLUMH...

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