Posts - Blue Faery Liver Cancer | HealthUnlocked

Blue Faery Liver Cancer

712 members•401 posts

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The family dynamics are killing me!

Hello everyone, For context, see my previous post: https://healthunlocked.com/bluefaerylivercancer/posts/151530427/devastated-by-family-dynamics My...

Hello everyone, For context, see my previous post: https://healthunlocked.com/...

AndreaWilson_Founder

Partner•19 hours ago

Meet Heather--BF's new program manager

Hello everyone, Please meet Heather_BFProgramMgr, Blue Faery's new program manager and another moderator in our community. Heather has personal experience...

Hello everyone, Please meet Heather_BFProgramMgr, Blue Faery's new program man...

AndreaWilson_Founder

Partner•6 days ago

6 months since y90 scans, etc.

I just had my 2nd MRI since my Y90 procedure The result was negative for HCC and GIST. My liver is stage 4 but is grade A and compensated. Functioning...

I just had my 2nd MRI since my Y90 procedure The result was negative for HCC and...

Patient•8 days ago

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Dealing With Changes

Hi Everyone. I just wanted to let everyone know that I'm feeling/ doing better this week. After three weeks of changing/increasing blood pressure meds to keep...

Hi Everyone. I just wanted to let everyone know that I'm feeling/ doing better t...

Moderator•13 days ago

CURE launches 2025 patient survey

CURE launches 2025 patient survey As CURE continues to evolve, it wants to hear directly from patients, survivors, and caregivers about how they prefer...

CURE launches 2025 patient survey As CURE continues to evolve, it wants to hear...

AndreaWilson_Founder

Partner•15 days ago

hello

how is everyone doing tonight

how is everyone doing tonight

Patient•19 days ago

Love Your Liver attendee speaks!

From an attendee of our Love Your Liver for Black History Month workshop last week. "I very much enjoyed last week's seminar on liver cancer. Although...

From an attendee of our Love Your Liver for Black History Month workshop last we...

AndreaWilson_Founder

Partner•21 days ago

What's Been Going On In My World

Hi everyone. I hope everyone has had a good week? I'm afraid it's been a few months since I could say that. As I mentioned before, I've had some health issues...

Hi everyone. I hope everyone has had a good week? I'm afraid it's been a few mo...

Moderator•26 days ago

Searching a good doctor for oncology and Y90 treatments in Indiana.

Have had 4 rounds of standard chemo. Durvalumab, gemcitabine and cisplatin. Have stage 4 bile duct cancer that spread to my liver. Masses on both sides and...

Have had 4 rounds of standard chemo. Durvalumab, gemcitabine and cisplatin. Hav...

•29 days ago

Share to inspire: BMS wants to hear your stories

If you would like to share your story about your health condition or treatment with a BMS medicine, Share to Inspire is for you. It's designed...

If you would like to share your story about your health condition or treatment w...

AndreaWilson_Founder

Partner•29 days ago

The Truth About Liver Cancer: Future Topics

Hello everyone, We're having our first The Truth About Liver Cancer workshop on Saturday, March 15, at 12 p.m. ET. The topic is Patient...

Hello everyone, We're having our first The Truth About Liver Cancer workshop on...

AndreaWilson_Founder

Partner•1 month ago

Be the first to reply

hello

hey everyone how is everyone doing tonight

hey everyone how is everyone doing tonight

Patient•1 month ago

Meet our second moderator Foxy1977

Hey everyone, Please meet Foxy1977 She, along with DancingEyes63, are the moderators for our community. Both ladies have personal experience with HCC as...

Hey everyone, Please meet Foxy1977 She, along with DancingEyes63, are the mod...

AndreaWilson_Founder

Partner•1 month ago

Are you an individual living with cancer?

Are you an individual living with cancer or beyond cancer looking to maintain a physical activity routine? If so, you may be eligible to participate in a...

Are you an individual living with cancer or beyond cancer looking to maintain a ...

AndreaWilson_Founder

Partner•1 month ago

Be the first to reply

AASLD seeks patients/caregivers for the 2025 Meeting

Hello everyone, The American Association for the Study of Liver Diseases (AASLD) is seeking patients and caregivers for its patient programming for its 2025...

Hello everyone, The American Association for the Study of Liver Diseases (AASL...

AndreaWilson_Founder

Partner•2 months ago

We're hiring!

Blue Faery is seeking a full-time Program Manager. This is a remote position. As the program manager, you will wear many hats, including...

Blue Faery is seeking a full-time Program Manager. This is a remote position. ...

AndreaWilson_Founder

Partner•2 months ago

Wondering about cysts or mass

I have had cysts or they use the term mass for years. One is just a Nass of blood vessels I think. They were unchanged as of 2022. Never knew they were there,...

I have had cysts or they use the term mass for years. One is just a Nass of bloo...

Patient•2 months ago

anything to help with night sweats?

hey guys. just signed up to this form so i don't really know anything. don't even know where i'm writing to or if i'm making a new post, but that's ok for...

hey guys. just signed up to this form so i don't really know anything. don't e...

Patient•2 months ago

MRI LInac Radiotherapy

My husband is due to have treatment by MRI linac Unity machine. Would be interested to hear from anyone who has had this treatment.

My husband is due to have treatment by MRI linac Unity machine. Would be interes...

Caregiver•2 months ago

MsTeeniebaby

I’m new to this forum so I just wanted to share a little bit about me and my journey so far. I had been experiencing severe, devastating diarrhea, off and own...

I’m new to this forum so I just wanted to share a little bit about me and my jou...

•3 months ago

Healthcare is messy

Hello everyone, This week has been a grind. My amazing future mother-in-law, who is 90 years old, has been in the hospital. Twice! Before...

Hello everyone, This week has been a grind. My amazing future mother-in-law, ...

AndreaWilson_Founder

Partner•3 months ago

Lactulose

Any liver cancer patients taking Lactulose. I started and am quitting after about 6 weeks. Could not tolerate the side effects. I tried several different...

Any liver cancer patients taking Lactulose. I started and am quitting after abou...

•3 months ago

Hoping For a Happier New Year

I hope that everyone had a nice holiday. Mine wasn't what I'd hoped for but I made it through. Christmas was always my favorite time of the year. My Christmas...

I hope that everyone had a nice holiday. Mine wasn't what I'd hoped for but I ma...

Moderator•3 months ago

Merry Christmas, Happy Hanukkah & more

I wanted to wish everyone a very happy holiday. Blue Faery's team will work limited hours between Christmas and New Year's, but you know it's...

I wanted to wish everyone a very happy holiday. Blue Faery's team will work limi...

AndreaWilson_Founder

Partner•3 months ago

Webinar Recording - TTALC Rural Realities 💙

The webinar recording of our last 2024 The Truth About Liver Cancer (TTALC) workshop is now available on our YouTube channel! In our TTALC Rural Realities...

The webinar recording of our last 2024 The Truth About Liver Cancer (TTALC) work...

•3 months ago

Be the first to reply

Devastated by family dynamics

Hello everyone, Normally, I wouldn't post something so personal happening inside my family. But it's rocked my world this past week. I took time off for my...

Hello everyone, Normally, I wouldn't post something so personal happening insid...

AndreaWilson_Founder

Partner•3 months ago

Diagnosed with HCC 10/2024

I am 51 years ,Diagnosed with HCC measuring 1.6×1.3×1.3. in october 2024.I have not started any treatment yet. But the plan is for me to wait for the tumor to...

I am 51 years ,Diagnosed with HCC measuring 1.6×1.3×1.3. in october 2024.I have ...

Patient•4 months ago

me again

i wound up in the hospital last wk because i couldnt poop so embrasseing im afraid it will happen again

i wound up in the hospital last wk because i couldnt poop so embrasseing im afra...

Patient•4 months ago

High CA15-3 markers

I had surgery for breast cancer.hormone positive HER2 negative . I received 8 chemotherapy Tamoxifen and Zoladex . January 2024 I got liver metastases. Ca15-3...

I had surgery for breast cancer.hormone positive HER2 negative . I received 8 ch...

•4 months ago

alone

i know that i have my family with me but some days i feal so alone.i have god carrying me and i am so thankful that he carries me but somedays it is hard .i...

i know that i have my family with me but some days i feal so alone.i have god ca...

Patient•4 months ago

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