Posts - Blue Faery Liver Cancer | HealthUnlocked

Blue Faery Liver Cancer

697 members•384 posts

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anything to help with night sweats?

hey guys. just signed up to this form so i don't really know anything. don't even know where i'm writing to or if i'm making a new post, but that's ok for...

hey guys. just signed up to this form so i don't really know anything. don't e...

•4 days ago

MRI LInac Radiotherapy

My husband is due to have treatment by MRI linac Unity machine. Would be interested to hear from anyone who has had this treatment.

My husband is due to have treatment by MRI linac Unity machine. Would be interes...

•7 days ago

MsTeeniebaby

I’m new to this forum so I just wanted to share a little bit about me and my journey so far. I had been experiencing severe, devastating diarrhea, off and own...

I’m new to this forum so I just wanted to share a little bit about me and my jou...

•8 days ago

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Healthcare is messy

Hello everyone, This week has been a grind. My amazing future mother-in-law, who is 90 years old, has been in the hospital. Twice! Before...

Hello everyone, This week has been a grind. My amazing future mother-in-law, ...

AndreaWilson_Founder

Partner•8 days ago

Lactulose

Any liver cancer patients taking Lactulose. I started and am quitting after about 6 weeks. Could not tolerate the side effects. I tried several different...

Any liver cancer patients taking Lactulose. I started and am quitting after abou...

•20 days ago

Hoping For a Happier New Year

I hope that everyone had a nice holiday. Mine wasn't what I'd hoped for but I made it through. Christmas was always my favorite time of the year. My Christmas...

I hope that everyone had a nice holiday. Mine wasn't what I'd hoped for but I ma...

Moderator•20 days ago

Merry Christmas, Happy Hanukkah & more

I wanted to wish everyone a very happy holiday. Blue Faery's team will work limited hours between Christmas and New Year's, but you know it's...

I wanted to wish everyone a very happy holiday. Blue Faery's team will work limi...

AndreaWilson_Founder

Partner•29 days ago

Webinar Recording - TTALC Rural Realities 💙

The webinar recording of our last 2024 The Truth About Liver Cancer (TTALC) workshop is now available on our YouTube channel! In our TTALC Rural Realities...

The webinar recording of our last 2024 The Truth About Liver Cancer (TTALC) work...

AllysonBlueFaery

Administrator•1 month ago

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Devastated by family dynamics

Hello everyone, Normally, I wouldn't post something so personal happening inside my family. But it's rocked my world this past week. I took time off for my...

Hello everyone, Normally, I wouldn't post something so personal happening insid...

AndreaWilson_Founder

Partner•1 month ago

Diagnosed with HCC 10/2024

I am 51 years ,Diagnosed with HCC measuring 1.6×1.3×1.3. in october 2024.I have not started any treatment yet. But the plan is for me to wait for the tumor to...

I am 51 years ,Diagnosed with HCC measuring 1.6×1.3×1.3. in october 2024.I have ...

•1 month ago

me again

i wound up in the hospital last wk because i couldnt poop so embrasseing im afraid it will happen again

i wound up in the hospital last wk because i couldnt poop so embrasseing im afra...

•1 month ago

High CA15-3 markers

I had surgery for breast cancer.hormone positive HER2 negative . I received 8 chemotherapy Tamoxifen and Zoladex . January 2024 I got liver metastases. Ca15-3...

I had surgery for breast cancer.hormone positive HER2 negative . I received 8 ch...

•1 month ago

alone

i know that i have my family with me but some days i feal so alone.i have god carrying me and i am so thankful that he carries me but somedays it is hard .i...

i know that i have my family with me but some days i feal so alone.i have god ca...

•1 month ago

hello

hi how is everyone

hi how is everyone

•1 month ago

Can someone explain the results to me?pls

Anti-M2 Fusion Protein Ab14.2 0.1 - 1.0 RATIOLiver Subtypes Anti Sp100 Ab12.6 0.1 - 1.0 RATIOLiver Subtypes Anti Mitochondrial M2 Ab9.2 0.1 - 1.0 RATIOLiver...

Anti-M2 Fusion Protein Ab14.2 0.1 - 1.0 RATIOLiver Subtypes Anti Sp100 Ab12.6 0...

•1 month ago

Tell BMS your thoughts

I've been asked to present to BMS's Medical Affairs team in January. As always, I like to include your personal thoughts in my slides. Their questions are...

I've been asked to present to BMS's Medical Affairs team in January. As always, ...

AndreaWilson_Founder

Partner•2 months ago

ACCC seeks HCC patient treated with STRIDE

The Association of Cancer Care Centers (ACCC) is seeking an HCC patient treated with the STRIDE regimen (tremelimumab + durvalumab), who is willing to...

The Association of Cancer Care Centers (ACCC) is seeking an HCC patient treated ...

AndreaWilson_Founder

Partner•2 months ago

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Recruiting panelists for our upcoming webinar!

Join Us as a Panelist for an Impactful Webinar on Rural Cancer Care! Are you passionate about improving cancer care in rural communities? Do you have...

Join Us as a Panelist for an Impactful Webinar on Rural Cancer Care! Are you pa...

AllysonBlueFaery

Administrator•2 months ago

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Upcoming TTALC Webinar

Join our interactive workshop on cancer care in rural communities! Our panelists will share their experiences and highlight the challenges that cancer patients...

Join our interactive workshop on cancer care in rural communities! Our panelists...

AllysonBlueFaery

Administrator•2 months ago

me frankie

Hi imfrankie and i been diagosed with stage 4 liver cancer. imdoing the chemo and imunetherapy but it takes itstoll on not just thepatience but their caregives...

Hi imfrankie and i been diagosed with stage 4 liver cancer. imdoing the chemo an...

•2 months ago

Webinar Recording: Childhood Liver Cancer

If your child has pediatric liver cancer, such as hepatoblastoma or hepatocellular carcinoma, please check out this webinar recording featuring Dr. Arun...

If your child has pediatric liver cancer, such as hepatoblastoma or hepatocellul...

AllysonBlueFaery

Administrator•2 months ago

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MRI update.

My surgical Oncologist called today to tell me that my MRI on Saturday looked really good. The HCC tumor was rendered inactive by the Y90 procedure. My two...

My surgical Oncologist called today to tell me that my MRI on Saturday looked re...

Patient•2 months ago

Patient and Care Partner Perspectives on Early Enrollment into Gene Therapy Clinical Trials for Rare Diseases

The FDA’s Center for Biologics Evaluation and Research (CBER) is excited to host a patient and care partner listening meeting – Patient and Care...

The FDA’s Center for Biologics Evaluation and Research (CBER) is excited to host...

AndreaWilson_Founder

Partner•2 months ago

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Fighting Liver Cancer Radio Show -- seeking two more people before the end of the year

Hey everyone, We're doing a six-part series on liver cancer for The Price of Business Radio show. If you would like to be a guest on the show, please email me...

Hey everyone, We're doing a six-part series on liver cancer for The Price of Bu...

AndreaWilson_Founder

Partner•3 months ago

Remembering Jimmy Today

Today is a hard day or I guess I should say harder than usual. Today is the two year anniversary of losing my wonderful husband Jimmy to HCC. I work to raise...

Today is a hard day or I guess I should say harder than usual. Today is the two ...

Moderator•3 months ago

Event Recording - TTALC Unsung Heroes Workshop

Dear Liver Cancer Community 🫶, The recording of our TTALC Unsung Heroes workshop has been uploaded to the Blue Faery YouTube channel:...

Dear Liver Cancer Community 🫶, The recording of our TTALC Unsung Heroes worksh...

AllysonBlueFaery

Administrator•3 months ago

Watch Sharon's presentation at SALCS

DancingEyes63did an incredible job sharing her and Jimmy's story at the San Antonio Liver Cancer Symposium. I highly recommend you watch her presentation on...

DancingEyes63did an incredible job sharing her and Jimmy's story at the San Anto...

AndreaWilson_Founder

Partner•3 months ago

Incorporating the patient voice into HCC care

Hello everyone, After moderating a discussion at SALCS this past weekend where DancingEyes63spoke about her and her husband Jimmy's experience with HCC, I'm...

Hello everyone, After moderating a discussion at SALCS this past weekend where ...

AndreaWilson_Founder

Partner•3 months ago

Attended San Antonio Liver Cancer Symposium this past weekend

Hi everyone. I'm still tired today but it's worth it. I was lucky enough not only to get to attend the San Antonio Liver Cancer Symposium but also to be a...

Hi everyone. I'm still tired today but it's worth it. I was lucky enough not onl...

Moderator•3 months ago

San Antonio Liver Cancer Symposium

I'm so excited to see DancingEyes63 at this conference this weekend. She is sharing her and Jimmy's story, and I know she's going to be amazing. Hopefully,...

I'm so excited to see DancingEyes63 at this conference this weekend. She is shar...

AndreaWilson_Founder

Partner•3 months ago

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Webinar Recording - TTALC Rural Realities 💙

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