Posts - Blue Faery Liver Cancer | HealthUnlocked

Blue Faery Liver Cancer

701 members•390 posts

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hello

hey everyone how is everyone doing tonight

hey everyone how is everyone doing tonight

•3 days ago

Meet our second moderator Foxy1977

Hey everyone, Please meet Foxy1977 She, along with DancingEyes63, are the moderators for our community. Both ladies have personal experience with HCC as...

Hey everyone, Please meet Foxy1977 She, along with DancingEyes63, are the mod...

AndreaWilson_Founder

Partner•8 days ago

Are you an individual living with cancer?

Are you an individual living with cancer or beyond cancer looking to maintain a physical activity routine? If so, you may be eligible to participate in a...

Are you an individual living with cancer or beyond cancer looking to maintain a ...

AndreaWilson_Founder

Partner•11 days ago

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AASLD seeks patients/caregivers for the 2025 Meeting

Hello everyone, The American Association for the Study of Liver Diseases (AASLD) is seeking patients and caregivers for its patient programming for its 2025...

Hello everyone, The American Association for the Study of Liver Diseases (AASL...

AndreaWilson_Founder

Partner•14 days ago

We're hiring!

Blue Faery is seeking a full-time Program Manager. This is a remote position. As the program manager, you will wear many hats, including...

Blue Faery is seeking a full-time Program Manager. This is a remote position. ...

AndreaWilson_Founder

Partner•24 days ago

Wondering about cysts or mass

I have had cysts or they use the term mass for years. One is just a Nass of blood vessels I think. They were unchanged as of 2022. Never knew they were there,...

I have had cysts or they use the term mass for years. One is just a Nass of bloo...

Patient•30 days ago

anything to help with night sweats?

hey guys. just signed up to this form so i don't really know anything. don't even know where i'm writing to or if i'm making a new post, but that's ok for...

hey guys. just signed up to this form so i don't really know anything. don't e...

Patient•1 month ago

MRI LInac Radiotherapy

My husband is due to have treatment by MRI linac Unity machine. Would be interested to hear from anyone who has had this treatment.

My husband is due to have treatment by MRI linac Unity machine. Would be interes...

Caregiver•1 month ago

MsTeeniebaby

I’m new to this forum so I just wanted to share a little bit about me and my journey so far. I had been experiencing severe, devastating diarrhea, off and own...

I’m new to this forum so I just wanted to share a little bit about me and my jou...

•1 month ago

Healthcare is messy

Hello everyone, This week has been a grind. My amazing future mother-in-law, who is 90 years old, has been in the hospital. Twice! Before...

Hello everyone, This week has been a grind. My amazing future mother-in-law, ...

AndreaWilson_Founder

Partner•1 month ago

Lactulose

Any liver cancer patients taking Lactulose. I started and am quitting after about 6 weeks. Could not tolerate the side effects. I tried several different...

Any liver cancer patients taking Lactulose. I started and am quitting after abou...

•2 months ago

Hoping For a Happier New Year

I hope that everyone had a nice holiday. Mine wasn't what I'd hoped for but I made it through. Christmas was always my favorite time of the year. My Christmas...

I hope that everyone had a nice holiday. Mine wasn't what I'd hoped for but I ma...

Moderator•2 months ago

Merry Christmas, Happy Hanukkah & more

I wanted to wish everyone a very happy holiday. Blue Faery's team will work limited hours between Christmas and New Year's, but you know it's...

I wanted to wish everyone a very happy holiday. Blue Faery's team will work limi...

AndreaWilson_Founder

Partner•2 months ago

Webinar Recording - TTALC Rural Realities 💙

The webinar recording of our last 2024 The Truth About Liver Cancer (TTALC) workshop is now available on our YouTube channel! In our TTALC Rural Realities...

The webinar recording of our last 2024 The Truth About Liver Cancer (TTALC) work...

•2 months ago

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Devastated by family dynamics

Hello everyone, Normally, I wouldn't post something so personal happening inside my family. But it's rocked my world this past week. I took time off for my...

Hello everyone, Normally, I wouldn't post something so personal happening insid...

AndreaWilson_Founder

Partner•2 months ago

Diagnosed with HCC 10/2024

I am 51 years ,Diagnosed with HCC measuring 1.6×1.3×1.3. in october 2024.I have not started any treatment yet. But the plan is for me to wait for the tumor to...

I am 51 years ,Diagnosed with HCC measuring 1.6×1.3×1.3. in october 2024.I have ...

•2 months ago

me again

i wound up in the hospital last wk because i couldnt poop so embrasseing im afraid it will happen again

i wound up in the hospital last wk because i couldnt poop so embrasseing im afra...

•3 months ago

High CA15-3 markers

I had surgery for breast cancer.hormone positive HER2 negative . I received 8 chemotherapy Tamoxifen and Zoladex . January 2024 I got liver metastases. Ca15-3...

I had surgery for breast cancer.hormone positive HER2 negative . I received 8 ch...

•3 months ago

alone

i know that i have my family with me but some days i feal so alone.i have god carrying me and i am so thankful that he carries me but somedays it is hard .i...

i know that i have my family with me but some days i feal so alone.i have god ca...

•3 months ago

hello

hi how is everyone

hi how is everyone

•3 months ago

Can someone explain the results to me?pls

Anti-M2 Fusion Protein Ab14.2 0.1 - 1.0 RATIOLiver Subtypes Anti Sp100 Ab12.6 0.1 - 1.0 RATIOLiver Subtypes Anti Mitochondrial M2 Ab9.2 0.1 - 1.0 RATIOLiver...

Anti-M2 Fusion Protein Ab14.2 0.1 - 1.0 RATIOLiver Subtypes Anti Sp100 Ab12.6 0...

•3 months ago

Tell BMS your thoughts

I've been asked to present to BMS's Medical Affairs team in January. As always, I like to include your personal thoughts in my slides. Their questions are...

I've been asked to present to BMS's Medical Affairs team in January. As always, ...

AndreaWilson_Founder

Partner•3 months ago

ACCC seeks HCC patient treated with STRIDE

The Association of Cancer Care Centers (ACCC) is seeking an HCC patient treated with the STRIDE regimen (tremelimumab + durvalumab), who is willing to...

The Association of Cancer Care Centers (ACCC) is seeking an HCC patient treated ...

AndreaWilson_Founder

Partner•3 months ago

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Recruiting panelists for our upcoming webinar!

Join Us as a Panelist for an Impactful Webinar on Rural Cancer Care! Are you passionate about improving cancer care in rural communities? Do you have...

Join Us as a Panelist for an Impactful Webinar on Rural Cancer Care! Are you pa...

•3 months ago

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Upcoming TTALC Webinar

Join our interactive workshop on cancer care in rural communities! Our panelists will share their experiences and highlight the challenges that cancer patients...

Join our interactive workshop on cancer care in rural communities! Our panelists...

•3 months ago

me frankie

Hi imfrankie and i been diagosed with stage 4 liver cancer. imdoing the chemo and imunetherapy but it takes itstoll on not just thepatience but their caregives...

Hi imfrankie and i been diagosed with stage 4 liver cancer. imdoing the chemo an...

•3 months ago

Webinar Recording: Childhood Liver Cancer

If your child has pediatric liver cancer, such as hepatoblastoma or hepatocellular carcinoma, please check out this webinar recording featuring Dr. Arun...

If your child has pediatric liver cancer, such as hepatoblastoma or hepatocellul...

•3 months ago

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MRI update.

My surgical Oncologist called today to tell me that my MRI on Saturday looked really good. The HCC tumor was rendered inactive by the Y90 procedure. My two...

My surgical Oncologist called today to tell me that my MRI on Saturday looked re...

Patient•3 months ago

Patient and Care Partner Perspectives on Early Enrollment into Gene Therapy Clinical Trials for Rare Diseases

The FDA’s Center for Biologics Evaluation and Research (CBER) is excited to host a patient and care partner listening meeting – Patient and Care...

The FDA’s Center for Biologics Evaluation and Research (CBER) is excited to host...

AndreaWilson_Founder

Partner•4 months ago

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Fighting Liver Cancer Radio Show -- seeking two more people before the end of the year

Hey everyone, We're doing a six-part series on liver cancer for The Price of Business Radio show. If you would like to be a guest on the show, please email me...

Hey everyone, We're doing a six-part series on liver cancer for The Price of Bu...

AndreaWilson_Founder

Partner•4 months ago

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AASLD seeks patients/caregivers for the 2025 Meeting

Webinar Recording - TTALC Rural Realities 💙

ACCC seeks HCC patient treated with STRIDE

Blue Faery Liver Cancer Community Guidelines

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