Lots happening as usual, hubby isn't taking the easy route.
Had a tracheotomy Monday morning, on Monday evening he had an emergency and had to have it taken out and the breathing tube put back in.
This afternoon he had the tracheotomy redone this time with the correct size tube. I rang the hospital and his Dr actually answered the phone. He said this seems to have gone well and they've put him on stronger antibiotics, 3rd lot to try to clear his infection.
Tomorrow morning they'll start to reduce the amount of sedation and hopefully in a few days we may see some improvement.
I'm starting to go each way on the bus, which will save a lot of money, but add another 4.5 hours on to the day. I'll see how it goes.
I'm really praying this is the turning point, I don't know what else can be done
Now I'm going to have some vegetable soup and a sandwich. See you next time x 🙏❤️
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Castleview
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Thank you for updating us again. I hope these new set of antibiotics do the trick! They still have a plan in place, so that’s good news. It must’ve felt good to speak to his doctor. The doctor sounds positive so I hope that gives you some peace of mind.
I'm just so glad the doctor sounded a little more upbeat. Sometimes infections need a range of antibiotics to knock infections on the head. My brother in law had his tracheostomy tube removed after two weeks when his lungs were fluid free (he had pneumonia and a hospital acquired infection!).
Wishing you both all the love in the world. Keep your strength up for those long travelling days and tell hubby we're all wishing him well.
Glad you have posted, I’ve been looking out for your posts. Let’s hope he turns the corner soon and you have some good news to report. It must be so worrying for you and also very tiring. Look after yourself and try to rest, although I know that’s easier said the done.
Thank you for having the strength to keep us all updated during what must be such a stressful and exhausting time for you, physically, emotionally and mentally.Thinking of you often and hoping today's treatment will now be the turning point in his recovery journey xx
Lovely to see you post even though I am sorry there gas been some ups and downs again your emotions must be all over the place but I hope now things are in place your Husband will slowly start to stable and start his recovery however slow it is and your emotions will settle down which I am sure they will
Infections can take some clearing up but as we say he is in the right place so they can try all these stronger antibiotics and minitor him as they do which is reassuring
That is a big saving you are making on the bus and with all your visits one that I can imagine will help so much
Sounds like you have stolen their menu sandwiches and soup
We are all praying this is the turning point to so many of us following your posts would love nothing more than to see a post soon saying it is
Thank you for taking the time to keep us updated and I will keep looking out for more updates as you have times and news positive news I hope to tell us all x
Castle view my thoughts and prayers are with you both. Use the bus journey to relax and make the most of the countryside views. You can see more from the bus window and watch Spring arrive. Hope hubby will keep on improving 🙏 and remember to look after yourself.Take care.
Good to hear from you, Castleview. We are all hoping that hubby will show sustained improvement from now on. It's good to know that the doctor believes all is going well at last, And that in spite of the unit having to re-do the tracheotomy.
Look after yourself; you have our best wishes, as always 🙏💗
Thank you for again taking the time to update us . Its good news that they have laid out their plan of action for you and as someone else said these infections can sometimes be stubborn. I hope that there is good news tomorrow and that you know we are all willing him on to a good recovery x
Thanks so much for taking the time to update. Im so glad you have spoken directly to the doctor. I do hope that gave you some comfort? Please , please take care of yourself- your husband will so need you once he turns that corner. And I’m praying he does - and soon. He is in the best place and he is being taken care off. So you do have to think of yourself- difficult though as it is. Thinking of you all
Yes, I actually saw the Dr when visiting this morning, then left as they were about to start his treatment. It took them 2 hours to make sure it was right, he said. So pleased when he answered the phone and could update me himself x
Hi Castleview, thanks for posting, :-)Sorry to hear things aren't quite right yet, but finally thankfully you've seen his doctor that's treating him in person. That was upsetting to hear there'd been emergency and the tracheotomy had to be taken out, can only imagine what that was like but it has been done under this doctors watch this time and I don't know it just feels like it's going to all improve slowly but surely now properly. Another antibiotic hopefully will see this infection cured this time round. Have you found out from them what they think the infection is?
I'm glad you're having something to eat I chuckled when I read the thread about hospital food lol
Take care of you as best as you can and hoping n praying for you you both and that he now improves steady and strong 🤞🙏🫶
Thinking of you and I’ve got fingers, toes, arms and legs all crossed that the upticks start soon and keep going up. It’s going to be a long haul and as mentioned above, hubby will need you so much when he returns home so you have to take some self-care however you can. 🫂🫂
he’s taking his time but it sounds like he is slowly moving forward. You must be physically and emotionally exhausted. We were on our knees by week 4. Now, so many years later, it is just one of those difficult bumps we had. I would urge you to rest but it won’t make any difference. Try and take a break on the bus ride and well done for eating!
If you don’t feel like going one day then don’t. Dad swore blind he’d had no visitors. Your support team are clearly all here if you need them. Xx
Good to hear an update and I'm sure we all have the same thoughts for you both but please make sure you look after yourself through all of this, especially with the added hours of travelling which in itself can be exhausting. Hubby is getting the best care to help him through and if they can get the infection under control you will see more improvements. Thinking of you both xx
I'm so sorry you are both having such a bad time of it. Hopefully he will improve every day. Meanwhile you take care of yourself - you must be exhausted. ❤️
He’s certainly not taking the easy route is he? Hopefully 🙏🏻 he is in the way back. All that traveling is so difficult for you. Thinking of you and keep us updated. 💛xx
Hi Castle view almost 2 years to the day my husband had the op for replacement aortic valve and aortic graft. He was so ill before the op they gave him only 50% chance of survival. One surgeon refused to operate but thankfully one amazing man was prepared to try. His heart did not cope well with the op and they brought him back to ICU with his chest still open as they were sure they had to go back in. He then caught infection. He was on the lifesaving ECMO machine and was under sedation 11 days before they took him back to theatre and closed his chest. During which time they had to shock him twice. They then fitted a tracheostomy and started to withdraw sedation. It took another 4 days for him to open his eyes and a week before he spoke to me. But boy what a tale he had to tell!! He'd been to Ireland and America, met my cousins there ???? (I don't have any there) thought I'd swapped the car for a pickup and was driving about in a forklift truck!! 🙄🤔And was having none of it when I tried to persuade him otherwise. 🤣🤣2 years on he's back at work (at 68 🙄) goes hillwalking every weekend and climbed Snowdon last year. I'm telling you this not to make light of things but to let you know how miraculous the recovery can be and how amazing these doctors are. Also I understand every emotion you must be going through. Stay strong and take very great care of yourself. Lots of love to you both .
Thank you. What an amazing story and recovery. So pleased your husband is doing so well.The stuff my husband watches and reads, he's probably in outer space 🙂
Wow! Katdancer and Castle View! What heroism, how very moving! I'm waiting for surgery and I'll tell my hubby about both of you, to give him inspiration for his eventual role too. The stories part is fascinating - you may have a lot of your hubby's adventures to share in, coming your way, Castle view!
Sending everyone on this page love, on Valentine's Day. There are so many kinds of love. Inspiring one another, ✨️ by-passing the boundaries of not knowing others - the energies of the heart are so powerful, literally and energetically. Wishing you all healing and a level of peace no matter what the circumstances. XX
thank you for the update. It’s hard being the other half, but it sounds like you are being strong and recognising the progress that’s being made by your husband. I’m so glad you found this group who give great advice and support others so well.
He’s definitely putting everyone through hoops to get him better He’s a fighter which is good hopefully. Good to see you’re keeping up your strength with some proper food. Thinking of you all
I really do hope he starts to improve soon. The journey to and from the hospital must be very tiring for you and probably trying to catch buses in the busy times and getting a seat these days is difficult. Mainly gone are the days when people would give there seat up for you. Take care. Brian
Good to see the update and a small improvement is an improvement as the rest in here have said look after yourself first and foremost, you need to be in peak condition for when he gets home lol
In the five years or so I've been on this forum this story of your husband's recovery stands out for so many reasons. I'm sure that you are very much aware of how everyone is hoping for positive news from you. I'd like to mention how bravely you are battling on.
Thank you, dear soul, for your update. You and your hubby have a special place in my heart and SO many people continue to will you both on, with love. If I was near you I'd give you some lifts, but we are in south Bucks and I glean you're further north, as we didn't have snow when you did. Keep on eating, keep your strength up. 💪 You are an inspiration, whether you feel it or not. 🙃 Rooting for your hubby's ongoing healing. 😘 😘
Pleased to see your update I have held your family in my prayers and it's good to see there is some improvement . infections are so nasty but the hospitals have specialones to try if patients don't respond to the everyday ones Bus journeys can be relaxing if you enjoy them so I hope you are one of those people Hopefully you will start to see more improvement in the next few days
so stressful for you , like being in limbo . I know that feeling . We’ll still am till husband gets his heart sorted . Hope things will improve for him as I’m sure they will be seems like a fighter . Take care
Thank you for taking the time to update us, Castleview - you must be exhausted on so many levels. Your husband is certainly taking an interesting route to recovery and keeping everyone on their toes. It must have been a relief to speak with the doctor. Please be sure to look after yourself. We are all wrapping our love around you and sending prayers and positive vibes.
My Goodness..you both are going through the wringer...it is sad to hear..but he is obviously a fighter..and knows you want him back...he will make it..and hopefully be his old self...prayers and love to you..
Thank you for sharing your updates with us. I have been thinking about you and hoping for some positive news. Hopefully your husband will turn a corner now and start to improve. Try and take care of yourself as best you can.
The hospital have different and stronger antibiotics than the GP has. They will monitor him to see if they are working, and as others have said, he couldn’t be anywhere better at the moment. Antibiotics take about 3 days to kick in, so hope you see an improvement then. Once they get him less sedated he will be much better and should slowly begin to be more like himself. It is such a long ordeal for you and we are all thinking of you and rooting for you. We look foward to good news but in the meantime keep strong and take care of yourself. Love and prayers.
Glad to see a slightly more positive update 😊 hope to hear he’s feeling much better very soon.
Hope the bus is at least quiet so you can relax a little and enjoy the view (if it’s a nice route!) as taking time for yourself is very important- even if it is on the bus!
Please keep us all updated when you have a spare moment, as I can see there are lots of us looking out for your updates. Take care xx
Hello I too am praying that you soon will be able to see that light at the end of the tunnel. It is coming up for a year next month since my hubby had a heart attack and was kept in hospital for six weeks, until he had his triple by-pass I went the 25 miles each way every day along with my daughter as we were out of our own local hospital when it happened so I truly feel for you, you are going and not knowing what you will be met with thoughts and prays with you bothxx
You are being so strong, I just hope that you are saving enough reserve for when you get him home and have to carry on the nursing. Hoping that next time I read your post, it's good news.
I’m so sorry that your husband has been so unwell. I haven’t replied to give any advice as I’m not qualified to do so. I just wanted you to know that I’m thinking about both of you, and will remember you in my prayers xx
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