Experiences with

Tracheostomy

I was wondering if a tracheostomy might offer him more comfort compared to the intubation, for the time he has left. I don't even know if he wants that or how to even explain it to him and ask for his consent. We hadn't discussed this before as we didn't know it would come to this.

There is talk of him coming home when he has an uncuffed tracheostomy and still feeding through his RIG. My question is has anyone experience of coming home with a CUFFED tracheostomy as if he can't tolerate cuff down after 8-10 weeks, he'll have this for a very long time.

In my opinion that obviously because he has a tracheostomy which makes it harder to breathe especially if it's hot weather. He never ceases to amaze me, my superhero 💖

They were saying he'd have to go to a nursing home in Leeds to live, for tracheostomy care. We said ABSOLUTELY NOT, he's coming home, and we'll sign any paperwork to take responsibility for that. Still working on getting the cuff down so he can have different trachy.

I ended up waking up with a tracheostomy, (I could not talk) lost all of my functions & muscle mass. Being in ITU and no motor functions was so hard. I was having food via a tube,my mouth was dry,having no sense of day/night. I could not have any visitors because of covid restrictions.

i’ve posted twice before the first post was about me choosing to give her a tracheostomy or not with intubation and the second one was just about a week or so ago regarding the two females that had brought up Hospice to me.

Is it just me or does anyone else regularly get food and drink into your windpipe. Its not a full blown choking episode but very close, and requires a slow big deep breath and strong cough to shift it. I know when I have managed to shift it because it normally comes flying out.

He was still in intensive care with a cuffed tracheostomy due to having no swallow and vocal cord paralysis. Fast forward quite a few months and we are still in a very similar position, unfortunately.

He's had a surgical tracheostomy now and off sedation but has such muscle wastage around his body, he can't move his arms/legs etc and has subluxation of the shoulders, which isn't helping. I just thought I'd give you an update.

It has been a week since he had a tracheostomy, but they haven’t woken him up yet.

Are there any members of this group who are aware of anyone being placed into an induced coma with pneumonia and whilst in the coma suffered kidney issues and were placed on dialysis and then came off it. Has anyone knowledge of anyone coming out of an induced coma and being unable to speak or move

Hi everyone, I joined today and read some of your amazing posts, and some miraculous stories Joined the ICU rollercoaster 16 days ago when my Dad got rushed in to Intensive Care and intubated due to double pneumonia. Normally a health, active 77 year old. They said he wouldn't make it through the

Has anyone here or your loved ones had tracheostomy for severe pneumonia? It would be great to hear your positive stories now.... Thank you.

Then they put central line to give nor adrenaline and put cuffed tracheostomy tube, then BP was elevated a little bit then dropped back, and found AF in her heart. They decided to taker to ICU to keep her under close supervision.

I was taken in an ambulance to hospital from the GP surgery on 14th February as my oxygen was so low. By 15th February at 2am I was put to sleep. I had flu A, a chest infection, sepsis and pneumonia. I had to have 3 blood transfusions and dialysis while I was asleep for 3 weeks. I was given

Ralphs had a really good week , even though it was BH. Physio are pleased with him and say he can walk up and down the ward corridor without a nurse with him as long as he asks if it's okay each time. Had his cuff down and hour a day, and today SALT took it down at 11 this morning and stayed and played

Hi, saw SALT guy today. Ralph isn't going anywhere. He's been ringing round last 2 weeks and finally got to speak to the top woman in London. She says what he wants to do wouldn't work. Told him to work on getting the cuff down even if it takes a couple of months. The electric treatment didn't work,

My tracheostomy site looked like it had healed but I spotted discharge yesterday. One of the most distressing things is my hair is falling out and I have a third of it left. I would love some advice on this. Is there a support video call that happens for the community?

Ralph as cheerful as ever. Said a Dr from ENT came this morning and said we have a plan and walked out, lol. Not the consultant. I asked the nurse, she said yes he said keep going with the tracheotomy and take down to the next size. No idea what consultant thinks or even if he's seen the film yet. I

He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller