I'm 47 female and I was diagnosed 15 years ago with BD in Australia.
As a child I suffered from severe headaches, tummy pains and aches and pains in my muscles and joints. I loved to swim as a child but was unable to run without pain in my hips and lower back. I stretch regularly but am always tight. I also have all the ulcers and skin problems that come with this disease. Ive had different illness's that cant be explained but now realise that they are part of the BD. My oesophagus became severely inflamed about 5 years ago and I lost my voice for about 4 months. The drs could not find a reason for my illness and as a result my vocal cords have been damaged and I now have a slightly croaky voice. I have also had problems with my bladder over the years. For the past 2 years I have been on nerve blockers for the headaches and acid blockers for the internal bleeding. I just want to mention that I do have an extremely healthy diet. I hear there is a link to food and behcet's so if anyone has this link I would appreciate it.
I know Behcet's Syndrome is a rare condition, especially in Australia and New Zealand. I have never met another Behcet's sufferer and am keen to know how many of us are living in this
part of the world so I have created a Facebook page (closed group).
My aim is for us to come together and help support one another in our part of the world.
Here is the name of the group on fb. Behcet's - Australia & New Zealand