Hello, my name is Lieke. and I'm from Holland.
I've been ill for four years now. They finally ruled out crohn's disease, but they have absolutely no idea what the problem is then. I have skin lesions such as acne, eye problems/blurry vision and very much trouble with concentration. It seems like I suddenly became a complete idiot, although I was very smart before this. Sometimes I can't even follow a tv show, or write an e-mail when a sound appears, or someone starts talking. I also have inflammation in my colon and ileum and my joints really hurt. Above all that I am so tired all the time!! I was a dancer, but now I am already tired when I go up the stairs. not to mention the daily headaches... Someone pointed at me that it could be Behcet's Disease. But in Holland it is so rare most doctors don't even know it.
Also there is no community in holland for this disease. Can anyone tell me where I can find a doctor or a clinic that diagnosis Behcet's Disease? I am really desperate to get help... Germany or Belgium is also fine. I just want a diagnosis...
I would really appreciate it if I'll get answers from you guys.
Thanks already.. Greetz, Lieke