I have had lichen scelorsis for 20+ years and suffer with regular genital ulcers & mouth ulcers. When I was first diagnosed, bechets was suggested too but I had a long remission for about 7 years until I had my daughter 10 yrs ago and have had regular flare ups since then. I see a dermatologist every 6 months. Over the past 2 years my symptoms have got worse, skin rashes, light sensitivity, mouth ulcers, dry eyes, unbeliveable achy joints ( right down deep inside & crushing) ibs, frequent water infections, no body temperature control, psoriosis, dry skin, the list is endless. Some days I get up and feel so ill but no-one takes me seriously and ive been in trouble at work due to my sickness. My dermatologist is only interested in my LS & my local drs say nothing obscure is on my blood tests. 1 dr has said he thinks its BD and to keep a record of symptoms. Im going to start going to drs everytime I feel bad instead of just putting up with it. How did you guys get your diagnosus? Do you ever feel your just falling apart? How do you cope with work when you flare up? All advice gratefully recieved.
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