My rheumatologist wants me to come in when I'm feeling bad and if I have any rashes or new symptoms. I'm undiagnosed still, so he wants to see what is going on to try to get to the bottom of this.
The thing is, I always feel awful!! So how bad do I need to be before I go in for a same day visit?? I've been trying to wait until I have another mouthful of ulcers, and other "textbook" behcet's symptoms. But so far I've only had a couple ulcers that have gone away over the weekend. I always have skin sores, but since I was on a steroid they have gone down considerably.
But, right now, after getting off the steroid, I feel horrible. I am so stiff I can hardly move, my muscles hurt, my joints hurt, I'm sooooo exhausted I can hardly stay awake. But when I go in like this, there's nothing really for him to "see" if you know what I mean.
How do I know when I should go in? Sometimes I feel like I don't even know which dr to go to, my PCP, the rheumy, the neuro... I wish I could have them all in one!