bad heads!!!: Iv been waking up about 5am with... - Behçet's UK

Behçet's UK

5,391 members4,391 posts

bad heads!!!

dawnie2750 profile image
5 Replies

Iv been waking up about 5am with right bad heads lately...some go away, others are blinders that stay all day.. Iv taken co-codamol since I was 18 and they have always worked for me, however the past few weeks they dont seem to touch my bad heads..

Iv also got a wee blister/ulcer on my right eye that isne painful but a bit irritating..and iv been getting a weird lumpy red angry rash like lumps/spots down the sides of my face...itchy as heck!!!!

I have been to see my specialist today and Iv to have a scan at Newcastle...has anyone had any similar experience with bad heads and scans!!???

I am a wee bit worried.. but to be honest I just want the constant bad heads to do one...!!

Written by
dawnie2750 profile image
dawnie2750
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Jazzy21 profile image
Jazzy21

I have had headaches for many years including migraines. My gp prescribed amytryptiline which has worked. Hope this helps.

dawnie2750 profile image
dawnie2750

thats what iv just been prescribed too!!! How long before you go to bed do you take them???, I took mine at half nine but I feel a bit groggy the day... thanks x

lesleyg profile image
lesleyg

Hi Dawnie

I woke up with a whopper a week ago (including a very sore right eye). I usually manage to sleep it off in 24 - 48 hours (along with plenty of pain killers).

Lesley

dawnie2750 profile image
dawnie2750

I wish I had the option of staying in bed...although sometimes when they are very bad which thankfully isnt often i cant even speak never mind get out of bed!!! so I totally feel where your coming from lesley!!!

Having alfie whos five, is the main reason for me trying my best to look as positively as possible at BD.. that and my part time job which I love..

Godles profile image
Godles

Hi dawnie2750,

I was diagnosed a year ago, and it was the headaches that were proving one of the most difficult symptoms. No pain killer ever helped, but I used to put a bag of ice on my head and neck and this used to kind of numb it and make it more bearable.

The headaches cleared when I started treatment with prednisolone after I was diagnosed and began seeing a rheumatologist.

I also have the face rash you describe-so sore and itchy. This has recently returned, having cleared with prednisolone. I haven't found anything to soothe this sorry. I have this week decided to try applying the myrrh tincture which I have previously used as a mouth wash to help with ulcers, to see if that will help.

I'm still waiting to find an immunosuppressant that works for me (currently taking mycophenolate, just increasing the dose and jury is still out), still managing things primarily through prednisolone and now colchicine as well.

I had a CT scan on my brain to check for clots as headaches had been going on for so long. It was very straightforward and didn't involve feeling claustrophobic in a tunnel. Results came back clear, so the inflammation hadn't caused any damage.

Hope this helps. And hope you're feeling better soon. Some days I felt that there would never be life beyond the headaches, but I've realised with BD that everything seems to pass eventually.

Not what you're looking for?

You may also like...

Anal fissure- please help

Hi everyone, This is going to be a TMI post so I apologise in advance but I’m completely at a loss...
faye-g profile image

Anyone suffering from bad headaches/migraines??

Iv recently started suffering with bad headaches/migraines. Major throbbing on one side. Iv never...
Dezie profile image

SORE EYES

Hi everyone, I need some help or advice here. My eyes have been irritating for a few weeks....
pheobe67 profile image

Advice- newbie

General advice in june literally a month before my 27 birthday i became ill. i went from being a...
lizzykarma profile image

Rant- in pain- eyes playing up n more

iv just had a good old cry, sob rather. im ulcer free this week but was ridden last week. this week...
lizzykarma profile image

Moderation team

UKADMIN profile image
UKADMINPartner
TonyWT profile image
TonyWTPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.