iv just had a good old cry, sob rather. im ulcer free this week but was ridden last week. this week its the headaches and arthritis, im literally hobbling along at a snails pace due tot he pain in every joint, n when i say every i mean every joint. im in agony. my bvody is on fire! the codien aint touching it. the pain in my head is soooo intense i wanna scream, feel like my heads about to pop off my neck, and im twitching all over with muscle spasms its madness. lost my vision in my right eye again before now its like a cloudy tunnel vision in it. hope it comes back but scared i may have lost some of my sight. i cant cope with the pain. mum keeps telling me to just go to bed n im beggin her to take me somewer for morphine. i cnt cope. keep stuttering when im talking, my arms keep throwing things im trying to hold. its so scary. dnt know wats going on with me tbh. the pressure in my neck is awful, cnt hold my head up without support. im in tears x
i cnt stop twitching
dunno wat to do sobs
i hate this disease sooo mcuh
Anyone have any advice on stopping the twitching at least. its like toothache through all my limbs. im so fed up. this is literally excrutiating trying to type with my fingers.
havn a really bad BD night.
I knew it as well, but the baby needed a bath he was covered, food in his hair n everything, n i was already suffering. n then the older two wanted a bath so i had to do them n their hair. cnt even blow dry my own let alone sum1 else just pushed meself too far, n now paying the price. i need sum proper pain meds. im just on pred n its doing nothing, fl so abadoned by the medical world tbh. y cnt they giv me sumthing proper xx
iv just phoned the behcets nurse at liverpool centre of excellence, left a message hope they get back to me.
iv got 15mg pred left so thats just 2mos dose. which clearly isnt working, been on it over 3 weeks now. since mid sept. Also on Asprin, Ametripteline and cocodomol- just not doing anything for the pain at all.
Im so fed up.....
I hate this body... this body hates me.....
got to ring drs first thing just in case the centre doesnt get back to me i cant cope with this at all.
the pressure in my neck n head is so intense, my eyes are so sore, my body is swollen stiff and aching.
hope the centre of excellence gets back in touch, im so tired now, its been like this constant in june just fl so abandoned by the medical world. my GP is crap but its a ring at 8.30 n see if we have any appointments rigmorole, i tried this mornin n they had all dun.
Anyway im so tired, im really sorry for banging on, but this is a blog i guess so i cn rant get it off me chest n no one has to listen/read if they dnt want to.
fingers crossed 2mo is a brighter day