I was first Diagnosed with a different type of vascultis called HSP but after time failed to heal (HSP last up to a year max) they found that I had the HB11 gene and said I have behcets. I never really get major mouth ulcers and nothing on my genitals so i was really confused by the diagnosis after doing research. Really it probably doesnt matter if it wegners or behcets as the treatment is the same but I still wonder.
I have been in the hospital at least 10 times over the past two years since this started.
Remicade 7mg//kg monthly infusions
So I wonder if anyone else has my symptoms...
vasculitis usually on legs or stomach (see image)
pain in hands, ankles, knees, fingers, and extreme burning in feet
pain in liver (constant)
tons of GI issues (bleeding, bloating, pain)
Testicle pain (three days of screaming on dilliuadid ivs was insane)
loss of hearing
I also have tons of CT/lab work, so if you have any questions please let me know.
Also are you guys getting issues with pain meds. My primary wont prescribe anymore... my pain management doc has yet to get back to me