Hi
Does anyone with behcets have experience of a miscarriage. I have neuro behcets. Previously I’ve had clots in the brain and lung. But since I started taking infliximab 4 years ago it has been well controlled. I was diagnosed with a missed miscarriage last Monday and I was given medication to being on the miscarriage but it caused me to get sick, severe pain and hasn’t completely worked. The hospital are reluctant to do surgery to remove remaining tissue because of my history. I wondered if anyone with behcets has had a miscarriage and how it was managed. Thanks
Hello, sorry to hear what you’ve been through. I had 3 miscarriages at different stages in pregnancy after being diagnosed. Each was investigated thoroughly both through the NHS & privately without any formal conclusion. I still do not understand the cause but I’m convinced they were due to Behçets. Sorry I don’t have any positive advice, hopefully someone else might be able to provide some information. Good luck 🤗
Hi Julia,
Thanks very much for replying and sharing your experience with me, I’m so very sorry to hear about what you have been through. I do wonder if the behcets had an impact on the cause of miscarriage but as you say it’s impossible to tell. It certainly complicated the medical treatment options for dealing with the miscarriage anyway. I wish you the very best. Take care. Mary. x
Thank you for your very kind reply x If you want to have children I would encourage you to have your miscarriage investigated with any clinicians who will help and please don’t wait as I never had children as any investigations take many years which take up time from our natural body clock x
Thank you Julia for that advice. I’ll raise this with my rheumatologist first of all. I’m sorry for the sadness and pain this must have caused you. I am about to turn 41, it was my first pregnancy so the odds are against me I know that. But I try to keep that in perspective as I am generally quite well and flare free since 2016. I do hope you are too. All the very best. Mary x