I’ve been reading a medical study on the prevalence of Behcets and Fibromyalgia, I tried adding it here but it won’t let me (let me know if you want a pdf and we’ll sort it directly).
Also this led me to the ‘Behcets Disease Current Activity Form’. Does everyone have experience with this form? I don’t but I score worryingly highly on it. Again let me know if you want a pdf?
I guess what I’m interested in is the link between BD and FM and the specific indicators suggested by the study that seem to tie the two - fatigue, headache & arthralgia (which I’m really suffering with).
Are there many out there like this? Ulcers are not a massive problem (I’ve had them for 45 years you get used to it), but the list on the BD Current Activity Form is a mess for me-
Headache - oh hell yes
Mouth Ulceration - yes
Genital Ulceration - no
Erythema - yes legs
Skin Pustules - ankles yes
Joints - Arthralgia - oh hell yes
Joints - Arthritis - yes shoulders, elbows & spine
Nausea/vomiting/abdominal pain - abdo pain yes
Diarrhoea+altered/frank blood per rectum - no
Fatigue - I could sleep 24 hours a day if the pain allowed me to
a red eye - no
a painful eye - oh yes
blurred or reduced vision - yes
...well the form continues like this. I’ve been referred to the COE in Birmingham but it was just before the outbreak and they’re v v quiet.
Does everyone get results like this? I’d I don’t get some more suitable therapies/drugs I’m going to go nuts. Have morphine and a load more but far as I can tell it’s not a list of BD drugs
For anyone with BD and FM - how easy was it to get a diagnosis?
Thanks everyone 👍