Hi all. I'm Meg and live in Connecticut. I was diagnosed in 2011 with BD after 2 years of the 'text book' symptoms. I went of of work on disability in May 2012 for what I thought would be a month, two at most. Needless to say, I still am not back at work (OR veterinary technician) and am discouraged that I am beginning to think (or realize?) I most likely will never be able to return to my job in the veterinary field ever again. I am currently receiving disability benefits as well as federal medical assistance....which is fabulous because my IV Remicade infusions every 4 weeks are expensive! However, my general chronic fatigue and joint pain have actually worsened over time. 2 of my last 3 flare ups (which occurred over the past 2 months) left me with 20-30 oral ulcers each time....which again......worst I have ever had. Usually I would get 1-5 oral ulcers. Ulcerative colitis apparently wants to be my new BFF now as well.
I'm thinking I have to learn to accept that unemployment, SSI, financial hardship and chronic illness is my future. However, I have NEVER been one to give up....on anything. I don't want to accept that I will be fatigued and lethargic and in severe pain for the rest of my life....am I in denial?
Thanks everyone. I welcome any and all feedback