Latest update from Rienij,
Dear friends thank you for your support over the last three month. It certainly has been turbulent....
Latest update from Rienij.
It has been a mixed couple of weeks. Some reasonable and some downright awfull....
I've applied for the FM/a blood test.
My daughter had sent me an email years ago with her theory that cytokines and chemokines imbalances were responsible for fibro and other auto...
The FM/a test....I got my results.
At any rate I will definitely be asked to join in Dr. Denise Faustman's clinical trial for the BCG vaccine for fibro at Massachusetts General...
but I feel I am in a little bit of uncharted territory as far as CLL and ibrutinib is concerned. I suffer no symptoms of CLL and haven't for ...
A change for the better at last.
Woke up sweaty and in AF last night, but it settled down pretty soon....
Reoccurrence despite mitomycin
Hi everyone I’m sorry to say my recent cystoscopy revealed two tiny tumours. It would have been two years clear so I was devastated....
Not a cause for concern said my GP.
Sharon came home from work last night with some startling news. One of the other carers at the nursing home is off sick, with TB, which of co...
my partner has had his 1st BCG session last week and is really suffering side effects. Just wondered if anyone knows if his 2nd and subseque...
Natural Checkpoint Inhibitors?
Any decent research out there on " natural " checkpoint inhibitors? I am guessing they exist....
I had my blood drawn for the FM/a fibro test.
The FM/a blood test measures certain cytokines and chemokines in my blood and in theory if mine are low this BCG vaccine should raise them up...
Hi everyone I’m coming to the end of my BCG treatment with 4 out of 15 to go,unfortunately the side effects with my last 2 treatments were un...
even though i had a recurrence and a turp they have decided to do bcg again...
Back to Mitomycin not BCG
Hi everyone Just to update I had my second turbt ( 7 in total ) after the reoccurrence on Monday. I’m happy to say that there’s no new growth...
4 years on
After my Bladder Cancer diagnosis, along with CIS and having had 3 years of BCG, it was nothing compared to how friends and relatives reacted...
I have bladder cancer, solid tumor , inoperable. I've had bcg and gemcitabine which has been ineffective....
Reacuring bladder cancer
I am going in for my third operation to remove a tumour. "....
Pathos Report from Transurethral Urinary Bladder Tumor Resection
Finishing the surgery, my urologist thought the bladder tumors were entirely superficial and it shouldn’t affect my status for getting a lung...
BCG Bladder CA
Diagnosed 2013, surg, March 2014 surg for two more small tumors, BCG treatments 6, then 6 more, fast forward to scope last month, so far no C...
CLL, Bladder Cancer and BCG coming up for me
I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo in 2012 at Duke Med on a clinical trial stopped because of e...
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