Knee replacement : Hi all hope everyone is well... - Ataxia UK

Ataxia UK

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Knee replacement

Shahidzak profile image
8 Replies

Hi all hope everyone is well and healthy due to have knee replacement I have Ataxia off the cerebellum just a bit worried about the op thank you .

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Shahidzak profile image
Shahidzak
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8 Replies
Litty profile image
Litty

Good luck and I am sure the op goes really well but please make sure your anathatist knows you have ataxia and weak throat muscles x

Shahidzak profile image
Shahidzak in reply to Litty

Good morning Litty thank you for getting back I will make sure off that have a awesome weekend

tedjohnson profile image
tedjohnson

Hi Shahidzak

I had a replacement knee sometime ago and virtually all the pain has gone. Try and do the exercises but do them carefully so that you don't have an accident good luck

Where do you love?

Kind regards. Ted

tedjohnson profile image
tedjohnson in reply to tedjohnson

Sorry that should have been. Where do you live!!!

Problems with my typing. Ted

Shahidzak profile image
Shahidzak in reply to tedjohnson

Good morning Ted thanks for your reply I’m from West Sussex UK

benning profile image
benning

Good Luck to you but don't tell me -along with every other negative thing associated with Ataxia I HAVE TO HAVE A KNEE OP in the future .LOL

winch profile image
winch

I hope all goes well with your knee op. I too have cerebellar ataxia and have been trying to avoid a knee replacement. I have had steroid injections for the pain but the last one gave me no relief. As I use a rollator I worry about how I would get about after the operation and also how I would manage the exercises.

february profile image
february

Dear Shahidzak,

I'm 65 and have had ataxia for 20+ years. In 2017 I found out my ataxia is due to Niemann Pick C (NPC) disease. Anyway, I had a total knee replacement June 14th 2019 due to severe arthritis and a bone on bone situation. Per my orthopedic surgeon, I had 8 weeks of physical therapy pre-surgery to get my muscles stronger. Post-surgery I had another 8 weeks of physical therapy, the first two weeks in my home 3 times a week. I'm continuing to do the recommended exercises at home on my own daily. I'm virtually pain free now (after several months of chronic pain) and coming along very nicely! The only thing I would suggest is make sure your muscles are strong enough BEFORE surgery! My neurologist couldn't suggest that enough. Rehab will go much more smoothly! Also, echoing what Litty said, make sure your anethesiologist knows about your ataxia and the possibility of having weak throat muscles. I have sleep apnea and although I didn't need to use my C-Pap machine during surgery, I was required to bring it with me. I DID use it to sleep when I was in the hospital after surgery. I'm using a rollator in my home and usually a cane (stick) and my husbands hand when I leave my home at this time. Before I had surgery, I could walk, extremely carefully, in my home without any aides (although I fell a lot, which is NEVER a good thing). I've been using either a rollator or cane (stick) for several years when I leave my home to prevent falls. My goal now is to get back to being aides-free in my home again (and improving my balance, if possible, so I won't fall). My best to you and good luck with your surgery, as I'm SURE glad I had mine!...,;o)

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