Hi I’ve got sca2 have asked many questions on here and had helpful replies. I use a rollator inside and out all the time. Recently every time I use it I have the feeling of falling backwards. Even brushing my teeth I have to lean on the sink. Only just started feeling this. I hope other people have the same experience.
louise xx
Yes, definitely for me. Do take care and keep exercising. X
Thanks Patsy you take care too and thanks for confirming my falling backwards xx
I guess this is why we rollator users expect to eventually move to a wheelchair. Hang on as long as you can. Exercise to keep your legs and upper body strong. Think "is my rollator strong and stable enough?" Keep smiling ......
Will keep on exercising and try my best to keel smiling. Thanks for replying xx
🤔It’s possible ..that using a different version of a rollator would be helpful…the Upwalker enables the user to lean fore-arms on the supports and grip handles, it could help prevent backward falls.
Will have look. Thanks for replying xx
most definitely. I have a 3 wheeler for upstairs and another for downstairs and my big boy for outdoor and taking in the car is a 4 wheel with seat. My OT arranged for me to have a perching seat for either kitchen or bathroom, so maybe you could look at one of those for your bathroom xx
I have a 4 wheel rollator for outside a 4 wheel rollator for inside. We live in a bungalow cos I can’t do stairs, I have a bath lift had it 4 years cos I can’t manage
Our shower. What is a perching stool? Don’t know if it would be any good xx
A perching stool was issued to me by O/T but it was no use.
It is a high stool with a back but I didn't feel safe on it.
Thanks for clearing this up xx
like cocoa says - it's an adjustable stool with a back and arms. Seat tilts slightly forward. Not to be used as an everyday seat, but for sitting at sink should be ok. Is there a mobility shop near where you live so you can see and try out perhaps x
partner does most things for me don’t know if a perching seat would be any use, think we’ve got mobility shops in Dundee will look into it, thanks xx
Hi Louise I can definitely identify with you, I was diagnosed with ataxia of unknown type in 2006. I worked full time until lockdown 2020. I'm 55 and the good thing about not working is I have more free time to do exercise, balance, strength and cardio (rowing machine). I do believe this is v.important. As for feeling like you're falling backwards, this is very common with Ataxia, so you're not alone.
Hello newly diagnosed 
Hello all! I am new to this site but I wondered if I could have your help, its regarding Occupational Therapy for Ataxia?
Husband with cerebella ataxia
Knowing when your Ataxia has taken a turn.
Legs giving up - time for a wheelchair
