Hello: Hi I’ve got sca2 have asked many questions... - Ataxia UK

Ataxia UK

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weegiz12345 profile image
14 Replies

Hi I’ve got sca2 have asked many questions on here and had helpful replies. I use a rollator inside and out all the time. Recently every time I use it I have the feeling of falling backwards. Even brushing my teeth I have to lean on the sink. Only just started feeling this. I hope other people have the same experience.

louise xx

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weegiz12345
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14 Replies
PatsyIpswich profile image
PatsyIpswich

Yes, definitely for me. Do take care and keep exercising. X

weegiz12345 profile image
weegiz12345 in reply toPatsyIpswich

Thanks Patsy you take care too and thanks for confirming my falling backwards xx

Telegraphist profile image
Telegraphist

I guess this is why we rollator users expect to eventually move to a wheelchair. Hang on as long as you can. Exercise to keep your legs and upper body strong. Think "is my rollator strong and stable enough?" Keep smiling ......

weegiz12345 profile image
weegiz12345 in reply toTelegraphist

Will keep on exercising and try my best to keel smiling. Thanks for replying xx

wobblybee profile image
wobblybee

🤔It’s possible ..that using a different version of a rollator would be helpful…the Upwalker enables the user to lean fore-arms on the supports and grip handles, it could help prevent backward falls.

This is an Upwalker..a version of a rollator.
weegiz12345 profile image
weegiz12345 in reply towobblybee

Will have look. Thanks for replying xx

Jellybean75 profile image
Jellybean75

most definitely. I have a 3 wheeler for upstairs and another for downstairs and my big boy for outdoor and taking in the car is a 4 wheel with seat. My OT arranged for me to have a perching seat for either kitchen or bathroom, so maybe you could look at one of those for your bathroom xx

weegiz12345 profile image
weegiz12345 in reply toJellybean75

I have a 4 wheel rollator for outside a 4 wheel rollator for inside. We live in a bungalow cos I can’t do stairs, I have a bath lift had it 4 years cos I can’t manage

weegiz12345 profile image
weegiz12345

Our shower. What is a perching stool? Don’t know if it would be any good xx

cocoa profile image
cocoa in reply toweegiz12345

A perching stool was issued to me by O/T but it was no use.

It is a high stool with a back but I didn't feel safe on it.

weegiz12345 profile image
weegiz12345 in reply tococoa

Thanks for clearing this up xx

Jellybean75 profile image
Jellybean75

like cocoa says - it's an adjustable stool with a back and arms. Seat tilts slightly forward. Not to be used as an everyday seat, but for sitting at sink should be ok. Is there a mobility shop near where you live so you can see and try out perhaps x

weegiz12345 profile image
weegiz12345

partner does most things for me don’t know if a perching seat would be any use, think we’ve got mobility shops in Dundee will look into it, thanks xx

Tallguy101 profile image
Tallguy101

Hi Louise I can definitely identify with you, I was diagnosed with ataxia of unknown type in 2006. I worked full time until lockdown 2020. I'm 55 and the good thing about not working is I have more free time to do exercise, balance, strength and cardio (rowing machine). I do believe this is v.important. As for feeling like you're falling backwards, this is very common with Ataxia, so you're not alone.

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