Eye test &. Eye sight

[tedjohnson]

Hi everyone

I need some advise !   I have just been back to the optician for the second time after one main test and then a second check two weeks later but the new glasses are still not right. They want me to have yet another test next week but I am wondering whether the problem is my Ataxia. (The optician said he knows all about Ataxia) I have got eye movement ( nystagmus) but I would have thought he would have known all about it.  Has anyone else got problems with their sight and if so are glasses a problem

Best wishes. Ted

[wobblybee]

Hi Ted😊

I had a similar experience with an optician.  In my case, although he thought he could solve the problem, he didn't actually know enough about 'fine tuning'😏  I had double vision and nystagmus.

In frustration I went for another opinion.  The second optician refused to issue a prescription and asked if I would like to be referred to an Eye Clinic.

Thanks to her, I've had thorough testing and been reviewed by a Consultant Eye Surgeon at my local hospital Eye Department.

If you have doubts ask to be referred.  I know that these clinics deal with this sort of thing on a regular basis 😊xB

[anihol]

Hi ted I was issued glasses and found them to be no use except by reducing my headaches,  my blurred vision gets worse on movement.  But I still use them for my headaches.

[Sqd-2415_hoc]

Hi,

Diagnosed three years ago  CA, though recognised had problems which I ignored as similar to MND and twin sister died from after 2 years GP first shot was Parkinson's,

I have  nystagmus, diocular and reduced ocular suppression.

All fairly mild

Spec savers were very good referring me to GP and consultant bit of a wait 

Spec savers reference book has about 400 pages and one paragraph on ataxia.

Not a lot, in my case that can be done as fatigue is a factor no good having prisms as would just shift the problem surgery really last resort.

I suspect consultant knew before hand but did do all the tests and logs you into system if need advice

Sounds a bit "negative Norman" but point is we are all different and, I found NHS very good but be nice to get seen quicker, time was precious inmy sister's case.

Rodders

Andover  

[Rubydubys]

My 6 year old has nystagmus and she is waiting to be seen by the opthamologist at our hopsital, i got the impression its not somthing the optician deals with. Im sure your gp could refer you...

[Hidden]

Hello,

PRISMS (a special lens type) have been highly suggested from a handful of our ataxia support group members who have eye problems (double vision, nystagmus, etc.)  My mother didn't want to go that route, and so a neuro-opthalmologist suggested that she simply cover one of her eyeglass lenses with frosted duct tape -- a temporary, quick and cheap fix.

[alerted]

Ted Johnson..Hi there..I too have had the same problem.for the last 2 check ups,this time around my optician has put something in one of my lenses (prism)that is what I was trying to think of.....hope this is of help 

[silkwood]

I have CA and it has affected my eyesight big time. It is now one of my main symptoms.

[aburt449]

I am wearing glasses due to my blurry vision but according to Eye clinic my vision is absolutely fine, he said that’s my brain cause the problems. So there is nothing he can do to help my blurry/ double vision.

[Jenandbeth in reply to aburt449]

Yes this is Beth too, brain not eyes!?!

[aburt449 in reply to Jenandbeth]

yep , that’s what I’ve been told . But just wonder why I need glasses then 😂😂😂