Ataxia UK
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Acute Dizziness

As with other contributors, I apologise if this question has been posed elsewhere. I have acute dizziness that accompanies my tremors and jerkiness. Does anyone else have this? Has anyone found a way of alleviating it? I am convinced if I could reduce the dizziness, I would be able to do so much more. I was diagnosed with CA nine years ago but I am still uncertain what is causing the severe dizziness when others,(thankfully), don't experience it.

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Sorry Springlove, I meant to say that it is not an automatic symptom for everyone with CA. That's why I was asking If any others who do suffer from this have found any way of alleviating it. 😊👍

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I am also constantly dizzy and have CA. So far nothing helps but I hold out hope for the new drug BIOHAVEN is researching called TRIGRILUZOLE.

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🙂 It's a fact that there can be a wide disparity in the severity of symptoms. And, what can actually be challenging but managable to one person, can be extremely debilitating to someone else. Speak to your Doctor about this. There are medications to try, it may be trial and error but with luck you'll feel better able to cope. If you don't already have the information pack from AtaxiaUK, contact them🙂 If your Doctor is unaware of any medication available, refer them to ataxia.org.uk/news/Symptoma...

If there's no link to the specific symptom, refer to ataxia.org/fact-sheets and scroll down to 'Medications for Ataxia Symptoms' ( fact sheet 14)

Although this second link is to a US site, many of the medications may be prescribable in the UK too.

🙂xBeryl

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I had acute dizziness in France last year accompanied by awful vomiting. the doc said it was a bug . I still get dizzy when I lie down at night. It is helped by travel sickness tablets and the GP also said to practise the Brandt and Daroff exercises when lying down. the GP printed them off the internet for me but they did not work for me. you should be ble to access these on the internet. good luck Sylvia

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hi, I'm often dizzy, but when I get a really bad bout of it I can't even get across the room. My neurologist said that it's a form of migraine and as I have an allergy to ibuprofen I take tramadol when it starts to happen and go to bed to sleep.

I must say that since the neurologist said this I have been diabilitated much less from these extreme dizzy periods.

good luck, hope you can find a medication that helps you

xx

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