I thought I had vertigo but was diagnosed with Cerebellar Ataxia in March/April 2016. I have accepted my legs not working and being slow, but I have really bad dizziness and wondered if anyone else has thus problem? is there anything I can take?
Dizziness: I thought I had vertigo but was... - Ataxia UK
make sure that nothing else is causing the dizziness - ie an ear infection . there are some over the counter things you can take- some travel sickness pills may help. re the ataxia- keep as active as you can- it really is a case of if you dont use it you lose it. Have you applied for a blue badge. If you need help with washing an dressing - have you applied for attendance allowance ? you dont say your age. Find out from Ataxia uk if there is a local group to join. I also found the cards from Ataxia UK explaining what ataxia is very useful and they also sent a pack for GPs to my surgery. It is quite a shock to be given this diagnosis so look after yourself and all the best Sylviax
Thank you, I am 61 years old, I have never heard of Ataxia before and I worked for 5 Doctors for seven years. I don't get any help, and joined Ataxia Uk last week. I found their pack very useful and full of information. I have been given travel sickness pills (hyoccine bromide) to dry my mouth up to help with speech. Take care Sylvia, look after yourself
Hi Sharon I am taking Hyoscine Hydrobromide 150mg. These were recommended by my speech therapist. They dry your mouth up, as too much saliva makes you slur more. There are also aids available to make speaking easier according to my therapist. I don't see my neurological consultant till March, I will then ask about this and the dizziness xx
Hello my name is Andrew and I to have cerebellar Ataxia since 1997 I am 60 year old it affects my balance and coordination how does yours affect you hope you keeping ok
Hi Andrew, I was diagnosed in March 2016. It affects my balance and coordination as well. I find it really depressing as I can't do the things I've always done.I need help with most things, my speech is slurred so much so I can't use the phone. The dizziness is constant, as soon as I move. I am hoping my neurologist can prescribe something when I see him in March. I don't get a full nights sleep as I am in and out of the bathroom don't know if it's the baclofen (for my jerky eyes) or the Ataxia. How do you cope? you've had it a long time. Take care
Hello I cope with my problem by when I have my falls I just say should of took more water with it.
Having a good sense of humor goes a long way! I've had Cerebellar Ataxia for a number of years, and have learned to just live with it. I know there isn't much anybody can do about it, in my case, so I always try to accentuate the positives and minimize the negatives. As mine has slowly gotten progressively worse, some symptoms have become more difficult to deal with. So having a sense of humor, and having this support group is really helpful to me!
I get dizzy as well. However I feel my dizziness is more to do with the disconnection between my sensory processing and motor control. I don't get that many dizzy spells when I am sitting down or lying down. It seems to only happen when I am standing or walking (when I need to balance myself). If I am dizzy, I just sit down or take a rest to make myself feel better, and I employ some mindfulness techniques. I wonder if this strategy would also work for you? Also I manage my stress level. My stress is not so much about work or life etc, but about the stress from sensory environment like being in an unpleasant and noisy place. Recently after trying to be calm and accepting that my disease is not something I have total control of, my symptoms miraculously have become much milder. I think there is a lot of background stress when trying to figure out an answer for every problem we have, even when you are not feeling it consciously. Stress is a trigger for a lot of neurological problems.