A difficult situation for you Ern but you seem to have taken everything into consideration and decided what you can cope with. Wishing you well. Carole xx
Thank you. I am not ruling anything out, but I want to try all the less drastic options - I am at my GP on another matter on 20th, I will seek her opinion also.. I am wishing you well also at this time x
Thank you. The hospital surgeons have all been great. My surgeon wanted me to have simple BCG treatment earlier this year, the MDT intervened and said Bladder removal. My big test now is in three weeks - when yesterdays results are back from lab - if the is no spread, then I will hang on longer to treatment I have, if it is spreading.I may give way. I do not rate our MDT system at all.
Thank you Donald. Last Feb my consultant said I was 100% sure to have BCG treatment - the MDT (multidisciplinary team ) wanted me to have a bladder removal. A team made up from all kind of medical groups. My consultant said OK we shall, you can have BCG but the next time you come after a cysoscopy you will be seeing a surgeon, not me. BLACKMAIL? I will know in three weeks or so. If they can prove to me my BC is spreading. I have nothing to lose with bladder removal, but while other treatments are working. Thank's for your support Donald
O actually read a comment yesterday on the pulmonary fibrosis forum about a woman who had a lung biopsy and, although it was able to diagnose which type it was she was never the same afterwards and suffered breathless ever since. They don't always tell you that these also have a negative effect. I'll always remember what my father in law said after refusing chemo for an incurable cancer..........Some of these people only get paid AFTER the operations are done, meaning if lung biopsy is their profession then it's in THEIR interest to preform them not yours and to never assume that every surgeon or medical professional has a halo! That will always stick with me especially now that I have COPD and no matter how many times I call the surgery it's impossible to see anyone other than the nurse. She's so swamped under she's fully booked for months, whilst the "doctors" seem to work for three short days a week!
Thank you, it comes down to whatever offers me the best chance,, Major surgery is not guaranteed so before that, I want to try less invasive treatments like Chemo and Radiation if radical treatment is needed.
Thank you, in the end I will look at survival and other options, I will ask for less drastic treatments first. Chemo and Radiation seems a good option to start with, rather than removal of half my inside, if it has spread, then I will take that chance maybe.
Good luck Ern,stick to your guns as it's your body and health that you have a right on when and how you want it to go.hope you get some good results on your next consultation
Thank's - I will know more after my follow up in about 3 weeks. If my BC has not spread, then I do not want bouncing into major surgery, if it has, then that is different, but i think not yet,
All the best, Ern. We know our own bodies better well after a lifetime, and often better than some medics do. So do what you think best, and let us know how you get on.
Sorry to hear you are having a worrying time Ern007. Pleased everything was good yesterday and hope it continues. Take care. Always here if you need to chat. Brian
Hi Ern, as you say, you can keep your options open, that's one thing you are able to be part of. Everyone here is rooting for you. All my best wishes. Keep us posted 🙂xxx
Clearly when there are suggestions of such major invasive procedures it makes good sense for you to have your considered views taken into account . Good for you to not be passive in the decision making process. Fingers crossed the test results are good . And hope your mdt and every other medic treat you and your views with respect . Wish you all the best .
You stick to your guns Ern, you sound like you have thought this through, dont be bullied and pushed into something that is not right for you, as you say you can always change your mind later. We are with you every step of the way x
Thank you, exactly - Last time they appeared to try and present it as the only option, I may have fell for that as my consultant had agreed with current treatments but the MDT seemed to change hos mind
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