An Update - In Part.: As you all know I... - Lung Conditions C...

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An Update - In Part.

Ern007 profile image
49 Replies

As you all know I have Bladder Cancer among my long standing ailments.

The cancer is aggressive but not spread yet as far as I know..

It is Cancer in site - None muscle invasive but the cancer can become invasive.

I have been on BCG Treatment - The last was a 6 week course direct into my bladder. I am now on a 3 week course as the first course did not work.

Rather than an operation I am requesting Radiotherapy - Chemo and more BCG as an alternative to Radical Cysoscomy an operation to remove bladder, prostate and lymph nodes and part of intestine to make a route between kidney and stomach (external)

That for me would be when everything else ha failed - I believe there is Keyhole surgery for this.

To close this - After this treatment ends I will be sent for a diagnostic Cystoscopy which is a day case to see what is what after the biopsies ave been checked.

So some will remember the mystery CT Scan I had - I found out today urology dept ordered it to see if a 6mm nodule on my lung has grown - So I wait for that I think 9 days ago.

Thank you guys for all your support, since I joined Health Unlocked.

I will update more a I know it.

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Ern007
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49 Replies
sassy59 profile image
sassy59

I’m really hoping that your cancer doesn’t spread Ern and that this time the BCG treatment works for you. I’m thinking of you and wishing you all the best.

Hoping you get the CT scan results soon. Update us when you can please. Take care xxxxx🩷

Ern007 profile image
Ern007 in reply tosassy59

Thank you Carole - I hope the BCG works, this time just 3 weeks. I am sure had it spread last time, they would have let me know. I will update about the CT Scan results, fingers crossed the same as last time. xx

djbctla profile image
djbctla

I wish you the very best outcome. BERNARDINE 🌹🌹🌹

Ern007 profile image
Ern007 in reply todjbctla

Thank you Bernardine - I will post when I know something, hard part is waiting .

djbctla profile image
djbctla

and thinking, take of yourself 🌹🌹BERNARDINE

cofdrop-UK profile image
cofdrop-UK

💕💕🤞

Threecats profile image
Threecats

Hi Ern

I can see why you want to try further treatment first, as the operation option does sound radical. I do hope the BCG treatment brings you some better results this time.

All the best to you, TC

Ern007 profile image
Ern007 in reply toThreecats

Nail oh head TC - Operation is called. a " radical cystectomy"

Bingo88 profile image
Bingo88

Hope everything goes as well as possible Ern007. You are certainly going through a tough time at present. Hope you have support or someone to chat to. Always here if you need to chat. Brian

Ern007 profile image
Ern007 in reply toBingo88

Thank you Brian - Very kind. I am lucky to have a wife who although not in great health, looks after what i need all the time. I am lucky/

Bingo88 profile image
Bingo88 in reply toErn007

That's fine pal. Look after each other the best you can

Ern007 profile image
Ern007 in reply toBingo88

Yea we will and I will - Thank;s also for offer of chat, good to know.

B0xermad profile image
B0xermad

Sending positive thoughts your way as you wait for results

Ern007 profile image
Ern007 in reply toB0xermad

Thank you

watergazer profile image
watergazer

Wishing you well with the next treatment Ern. Fingers crossed it works this time and that the cancer hasn’t spread xx

Ern007 profile image
Ern007 in reply towatergazer

Thank you I hope it's not spread, I don't feel it has. I am waiting results of a CT Scan.

Shirleyj profile image
Shirleyj

Wishing you well. Take care x

Ern007 profile image
Ern007 in reply toShirleyj

Thank you x

Izb1 profile image
Izb1

I am hoping and praying that the BCG works for you this time Ern and it hasn't spread. Keep us updated x

Ern007 profile image
Ern007 in reply toIzb1

I hope it works, if not I pray they will try BCG/Chemo/Radiation therapy together, I have requested that. x

Mellywelly profile image
Mellywelly

My god I feel for you, my mum had a rare cancer where they wanted to remove bladder, back passage and some intestine. But she refused to have it. Good luck chook 👍

Ern007 profile image
Ern007 in reply toMellywelly

Thank you There are alternatives I wish them to try first.

katieoxo60 profile image
katieoxo60

Best wishes for a good outcome in the near future Ern 007, take care.

Ern007 profile image
Ern007 in reply tokatieoxo60

Thank you.

Nula2 profile image
Nula2

Hi Ern 🙋‍♀️, good luck with the treatment, really hope you get a positive outcome 🤞and pleased you solved the puzzle of who ordered the scan 🙂. Keep us all posted xxx

Ern007 profile image
Ern007 in reply toNula2

Thank you, yea I know who it was the Urology consultant. I will for sure keep you posted x

peege profile image
peege

Its sounds like a plan Ern so I really, really hope that the BCG works this time and will keep everything crossed for you 🙏 Very best wishes

Ern007 profile image
Ern007 in reply topeege

Thank's, yea to me it is a plan - A plan is needed - It really helps.

Mooka profile image
Mooka

I hope the next round of treatment works for you and it’s not too tiring 🤞🤞

Ern007 profile image
Ern007 in reply toMooka

Yea I hope so to, there are other options though, probably more tiring than BCG though.

CDPO16 profile image
CDPO16

Thinking of you and wishing you well Ern xx

Ern007 profile image
Ern007 in reply toCDPO16

Thank you it's a matter of waiting now for results of scan, and a Cystoscopy with biopsies to see if this BCG has worked. xx

Alberta56 profile image
Alberta56

Best wishes Ern. My fingers and toes are crossed. I hope the BCG works as well for you as it did for my neighbour who had bouts of BCG some years ago . xxx

Ern007 profile image
Ern007 in reply toAlberta56

Oh thank's for that, interesting it worked, i am on my second course so won't know until after my next Cystoscopy xx

Alberta56 profile image
Alberta56 in reply toErn007

More best wishes. Neighbour is in his 80ies and looks quite chipper.xxx

Nicholatracy profile image
Nicholatracy

Hoping your treatments work and reminding you to stay strong 🐞🐞🐞

Ern007 profile image
Ern007 in reply toNicholatracy

Thank you - I try and stay strong, not just for me, but my wife and family .

leo60 profile image
leo60

All the very best Ern, thinking of you 😊 xx

Ern007 profile image
Ern007 in reply toleo60

Thank you lo60 x

HelenAlora profile image
HelenAlora

Just wanted to send you best wishes as this sounds a big thing to deal with . It sounds like you know what you’re dealing with and how you want to proceed . I do admire your determination to be in control . So along with everyone else - I send best best wishes and admiration in spades !

Xxh

Ern007 profile image
Ern007 in reply toHelenAlora

Thank you HelenAlora - I want to be in control as long as it's a positive for me to do that. I am sure it's best to try all the options, and save the worst as a last resort. xx

jackdup profile image
jackdup

praying for positive results from the cancer treatments and that the 6mm nodule is benign and unrelated.

Ern007 profile image
Ern007 in reply tojackdup

Exactly.

Germantara profile image
Germantara

Sorry to hear you're having a rough and worrying time

Ern007 profile image
Ern007 in reply toGermantara

Thank you,

Greenthorn profile image
Greenthorn

Hi Ern, my first thought is how on earth can you paint such lovely pictures with such a mesh of things on your mind. Well I can kind of guess the answer: it takes you out of yourself and immerses you in a pleasure dome. I would like to think that painting is also a healing therapy. | wish you a full palette of colours and a new set of brushes! My very best wishes to you and thanks so much for updating us all. As the Bing Crosby song goes we have to "Ac-cent-u-ate the positive and E-lim-in-ate the negative." I wish you tons of the positive stuff.

Ern007 profile image
Ern007 in reply toGreenthorn

Why thank you. When I paint I am somewhere else I can create even with the rubbish being thrown at me. At this moment I have painted a large planet not subdued. Where I am looking at the planet are lots of weird spike rocks- To small planets to give the painting depth,. I have steps leaving my planets and touching the other - Kind of a stairway to wherever. If it turns out OK, I will copy to a larger canvas. Thank you yes, I could do with tons of positive stuff,

Thinking of you and wishing you all the best. It's great you have your painting to take you somewhere else, and we appreciate you sharing your paintings with us too.

Ern007 profile image
Ern007 in reply toHungryHufflepuff

Thank you - At times it's good to be "somewhere else"

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