I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection.
One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade.
On the 14th july when everyone was being romantic and passing the choc - I was havong a flexy Cystpscopy.
To go back to the letter it said please come for BCG Treament on 29th May and in the spot reserved for conditions, it simple said No Cancer was found in my bladder after the flexy cystoscopy.
So nothing had grown from original cells in December. 2023.
It is very good new but - Bladder Cancer has a habbit of coming back. But for now I will be happy for what I have got.
I will stay on the BCG I think for another 18 months to 2 years. With flexy cystoscopy's to check I am clear. If it returns a TURBT will remove it.
After that it's I think TURBT - A trans urethral resection of bladder tumour if one is found and that will go on and on.
I am not 100% home free and I will always have to be checked, but ina better place than I was last year.
I also feel vindicated for my polite no thank you, for a Radical Cystocomy . (Bladder removal)
So next please can I have a miracle on my Lungs, my heart and my Kidneys,
Written by
Ern007
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Thank you Carole - It's better than I hoped for, I will keep to my treatments to give me best chance of staying free. Hoping you are OK Carole with yours, you are in my thoughts, xxx
that will be a lot of procedures to cope with in a short space of time but, overall it sounds like good news and seems hopeful. That is really great! 😊
Thank you HH - I will cope, the last three years has taught me that. Bladder Cancer can come back, but I will be having treatment, so it's very hopefull.
Dear Ern Iam so pleased for you, that no cancer was found in your bladder. Great news. Good job you refused bladder removal, otherwise that could have lead to another list of problems.
Try not to think it will return, be positive and take each day as it comes.
Wishing you all the best for the other treatments you will be having this month.
Thank you Issy - It was hard to refuse that, I know I was right, a 7 hour op. I had doubts Iwould survive. Again thank you, I am lucky, I tolerate the BCG very well . xx
Yes I have had amoxiclav and to be honest I took it easy,. You need to get some different maybe Issy. I remember when I had BC symptoms and was given amoxiclav. thinking it was a bladder infection. I would try a new one Issy xx
If I were an angel of the lord, but unfortunately I'm not.... Very pleased that the cancer has retreated and hope it stays that way. Good luck with your forthcoming procedures. Your entirely justified refusal to have a procedure the doctors wanted to do certainly gives me food for thought. I will know to stand up to them if at some future time they want to do something to me or hubby which I disagree with.
Thank you Chris Part om my decission was life changin with little quality left. worse with my other complaints, I doubt I would have stood a 6-7 hour operation.
I hope you remain cancer free ,if you get the kidneys lungs and heart sorted you will be healthier and able to function better I wish there was a magic wand for you Ern
Thank you B0xermad - I managed like the most of us until BC came along. to be rid at leaset for not, helps me cope with teh other problems. I think you did wave your wand at the right time
I sometimes wonder at the mindset of doctors, surgeons, when evaluating procedures or surgery. My mother, a, retired nurse and midwife used to refer to operations as "jobs for the boys" meaning all surgical operations were good (or bad) for their learning experiences. Personally I believe sunny weather and painting can bring miracles!👍🌱🥃
I remember Greebthorn when I went to hospital full off hope, and well founder as my consultant wanted me on 6 x BCG - That did not last lonf the MDT thought overwise and a a cyctoscopy was put to me - I went home then went back and declined, probably the toughest decision but in my head the right one.
I di d a pic last night so full of colout near blinded me, not good enough to show though, was 2D but it had a reason. I will be doing another today and who knows
Good morning Ern007. So pleased you have had good news and hope it continues with your other ailments. Surprising how some of us get various health problems and others get nothing. Hope your day goes well. Brian
it’s great news Ern , you’ve been on an emotional roller coaster over the past few years and now you can relax and concentrate on the positives going forward 😊 x
You’re still here Ern and that’s proof you’re a fighter and strong. You just keep doing what you do best making those beautiful paintings and being you, the beautiful you. All we can do when faced with horrible situations is ride through it as unfortunately life is tough, tougher for some than others but it just makes us stronger.
Thank you Wendy - I will still have tests which is good. I have /COPD/Heart now I can take more seriously again.Cancer takes over. Hugs back at you Dawn.
Thank you Dottie - I had good reason to stand my ground. My consultant was happy with BCG but they changed it to Cystoscomy, that as far as I am concerned the very verey last chance xx
It is positive news and hopefully for the future it doesn't matter how maney checks up or scans as long as its remains better outcome than you thought and I hope it does for you
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