I know people get op's cancelled but,... - Lung Conditions C...

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I know people get op's cancelled but, You Really Could Not Make This Up!!

Ern007 profile image
39 Replies

From my other posts most will know I have COPD, Lung Scarring, Heart Problems and a degenerating cervical spine.

I managed and coped

In late summer 2020 I had Bladder Cancer symptoms - rand 111 and they advised seeing GP on the Monday if this persisted - It did relent so thought all was well.

Came again went to Urgent Care - was treated for a kidney infection..

Saw a nurse and same again - Suspected infection.

Went to GP and she got me to a Urology Consultant on the two week rule.

I saw the urology doctor July 2021 and he gave me a flexy Cystoscopy in his ward office and cancer was confirmed, I saw it on monitor.

I think October 2021 I hade a TURBT to cut the tumour and take a sample.

Repeat was January 2022 when I had a Diagnostic Cystoscopy to see how it was and take a biopsy - No tumour but the biopsy from the site of the tumour showed it to be aggressive meaning likely to return, I was to have repeat Diagnostic Cystoscopy in 4-5 months,

But things changed - I was sent for 5 weeks treatment with Immunotherapy to try and make my body fight the cancer. I was told I would need a Diagnostic Cystoscopy after 6-8 weeks - Well I waited and phoned to be seen, worked I got a date which was cancelled for 2 days - Then just cancelled.

So getting worried I phoned in July 22 and got a date 2 October, Anyone seeing my previous posts will know, I got COVID two days before my op. Terrible,

So phoned and got a date for YESTERDAY 30th NOVEMBER 2022.

I was so pleased at last - had another pre op this Monday all is well.

Well NO - I got a phone call one the eve of the op cancelling until at earliest January 2023 - Reason THE SURGEON HAS COVID -You really could not make this up, I was gutted. Do I believe no other ops took place - NO I doubt that,

Sorry for long post - The dates are from my head but are very accurate or very close.

To end I am posting one of my more unusual painting Art is a way of me handling stress and do I have stress at the moment

I do paint fantasy art as unlike reality art, easier to be creative,

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Ern007
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39 Replies
Morrison10 profile image
Morrison10

sorry your having so many delays, hope your January date goes well, fingers crossed for you, and good luck Jean x

Ern007 profile image
Ern007 in reply toMorrison10

Thank You Jean.

sassy59 profile image
sassy59

That's truly awful Ern and a disgrace in my opinion. Sadly that seems to be the way things are nowadays and I don’t see any improvement on the horizon. I’m really hoping you don’t have another cancellation. You deserve to be well cared for and I hope you will be.

Thinking of you and the painting is wonderful. Love the colours. Xxx

Ern007 profile image
Ern007 in reply tosassy59

Thank You - Things are dire, watched BBC news and people stuck outside A/E for hours, it's a national disgrace x I have fingers crossed for Jan x

sassy59 profile image
sassy59 in reply toErn007

🤞🏼🤞🏼🤞🏼🤞🏼❤️

CDPO16 profile image
CDPO16

I'm so sorry for all your troubles Ern and hope that something gets sorted for you soon. Lovely painting and a wonderful way to deal with your stress. Thank you for showing us your latest art work. Carole xx

Ern007 profile image
Ern007 in reply toCDPO16

Thank you Carole and for your comments. I am starting a black canvas paining --- candles will be the subject.x

Alberta56 profile image
Alberta56

So sorry you've been messed about like this. I hope you will get your op soon. We're all rooting for you. xxx

Ern007 profile image
Ern007 in reply toAlberta56

Thank you, I look forward to posting "DONE"

Alberta56 profile image
Alberta56 in reply toErn007

This forum will breathe a collective sigh of relief when you do post DONE.

Ern007 profile image
Ern007

Thank You. Exactly - I did not want this procedure, but I know it's necessary and you have to ""psyche yourself up" and resign yourself it is going to happen......THEN the last minute phone call knock you back.. It is unfair.

Ern007 profile image
Ern007

Yep it does - 4 cancellations...One mine and one due to COVID but two other times, it's got bizarre.

peege profile image
peege

I'm so sorry all this has happened to you Ern, it's just awful. Could you keep ringing the surgeon's secretary to see if cancellations come up? It'll be such a relief to get it done and I sincerely hope it happens ASAP 🙏

Ern007 profile image
Ern007 in reply topeege

Gets stranger a cancelation now mean I am in hospital this Tuesday - Thank you.

Alberta56 profile image
Alberta56 in reply toErn007

Thank goodness.

peege profile image
peege in reply toErn007

👏👏👏 let's hope it really will really happen on Tuesday 🤞 🙏

ps love your painting, very Frida Khalo

Ern007 profile image
Ern007 in reply topeege

Thank you - Frida Khalo I think did a self portrait in a wicker chair painted by Van Gogh one of my fav artists,

peege profile image
peege in reply toErn007

Frida is my very favourite artist, she had such a difficult life

Patk1 profile image
Patk1

Love yr painting,v unusual.oh dear,hope consultant soon shakes it off & gets back to work.to be Hoped his team dont go down with it,after him.id ring his secretary + request as early an appointment as poss x

Ern007 profile image
Ern007 in reply toPatk1

Thank you. Due to cancelation I am now to go in for op this coming Tuesday.

Ergendl profile image
Ergendl

How awful, and worrying for you, Ern.

Ern007 profile image
Ern007 in reply toErgendl

Thank you. Due to cancelation I am now to go in for op this coming Tuesday.

Ergendl profile image
Ergendl in reply toErn007

All the best. Hope it goes ahead this time.

ladyn profile image
ladyn

That’s disgusting that people like yourself have to wait so long for urgent treatment. I’ve heard horror stories about people waiting to be treated. Hope you keep well

Ern007 profile image
Ern007 in reply toladyn

Thank you. Due to cancelation I am now to go in for op this coming Tuesday. So one piece of good luck.

helenlw7 profile image
helenlw7

There’s no wonder you’re stressed, anyone in the same situation would be! I do hope your January appointment isn’t cancelled although the length of time you’re having to wait must be very worrying. I love your artwork - my stress buster is knitting Aran jumpers, some might think a stress in itself!

Ern007 profile image
Ern007 in reply tohelenlw7

I got a phone call this morning, still forever changing,..Thank you. Due to cancelation I am now to go in for op this coming Tuesday.

helenlw7 profile image
helenlw7 in reply toErn007

That’s brilliant news. Please let us know how you get on.

Ern007 profile image
Ern007 in reply tohelenlw7

Thank you - I will

Jaybird19 profile image
Jaybird19

textures in painting . how do you achieve these ?. I add some materials to paintings to give different textures so always interested with ways to add this.

Ern007 profile image
Ern007 in reply toJaybird19

I got a phone call this morning, still forever changing,..Thank you. Due to cancelation I am now to go in for op this coming Tuesday. Depending on the texture - I build, I start dark, then lighter then if needed paler highlight - Also brush strokes can help and stippling. I will post you a link showing you how to achieve texture later,

Izb1 profile image
Izb1

Oh Ern007 I really feel for you, its no joke getting yourself ready then being cancelled and not just once. The whole nhs system is a mess and the fact that they cancel on a regular basis is disgraceful . I have been waiting to have a colonoscopy which has been cancelled twice, this should have been a two week window. I lost my temper on the last one and told then to refer me back to my doctor. The head nurse ohine me a couple of days later and went through the problems I am having with my head and agreed to a ct scan, I had this done but it wasnt clear so have had to book in again for a colonoscopy on the 6th , will see if it goes ahead. Your condition is serious and really shouldnt be left, keep chasing. Love the artwork and if it lets you escape even better . Take good care x

Ern007 profile image
Ern007 in reply toIzb1

I got a phone call this morning, still forever changing,..Thank you. Due to cancelation I am now to go in for op this coming Tuesday. To be honest I am confused,

Izb1 profile image
Izb1 in reply toErn007

Hi am not surprised you are confused, you have to just go with the flow and fingers crossed come Tuesday it will go ahead. Will be thinking of you x

Ern007 profile image
Ern007 in reply toIzb1

Thank you, they dare not cancel again, er I think x

Ern007 profile image
Ern007 in reply toIzb1

It is no joke and we are not alone - I feel for you and understand what you are going through. I wish you all the best x

Falcon22 profile image
Falcon22

So sorry to read this ...I've been through the same it's taxing and you loss a lot of time with appointments and family members. I started in 2019 ...doing pulmonary rehab...for Op at Brompton in March 2019 ...Serve Emphysema. Canceled due to COVID. Until Jan 2020. ...health deterated couldn't have lung vapor therapy. Lung Reduction time ...After much delay scans..rehab again...now lot worse on oxygen lost weight ...and just heard OP ...canceled due to me now having to be Optimised! I feel for you and have everything crossed for you ...for the 23rd

Ern007 profile image
Ern007 in reply toFalcon22

Thank you - I really do hope you get sorted soon.. I feel for you as I know how you must have been, All the best and keep as well as possible,

Karenanne61 profile image
Karenanne61

What a nightmare! I had to ops cancelled after I was prepped! I do hope all goes ahead Tuesday. I like your painting. Art and crafts are a wonderful way to free the mind . . . when they go well!

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