A Bladder Cancer Update.

[Ern007]

I got a telephone call early this morning, I was still in bed.

Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side.

So I asked her could I not get in at my local hospital - She then started talking about difficulties - eg The Doctors Strike.

Then she realised where I live and said "No wonder you want to swap, you live only two miles from your local hospital"

She said "Consultant says I have to have Flexible Cystoscopy 8 weeks after my BCG ended" Which was in December.

So she said she would talk to my hospital waiting list person and she said probably would be OK, but to ring her Tuesday. I still may have to go into the private hospital.

Whichever a Flexy Cystoscopy was what I was diagnosed with, it much thinner and no spinal anaesthetic will be needed, just a local applied. I also can go home after it, a much smaller procedure than the rigid cystoscopy - It's to look in the bladder and maybe if needed, it can take a biopsy. My fingers are crossed,

Another development when I saw GP, I told her I had bad low back pain, She referred me to X-Ray and they phoned morning after and asked could I come in at one.

I did and was shocked - I was took straight to X-Ray room, (no waiting) X-Ray done and I was out.

Anyway I got a call from doctors yesterday morning and was asked to go see GP in about 10 days to discuss the X-RAY - I wonder what it is and will it lead to multiple scans.

[Oshgosh]

I hate it when they ring mr when I’m in bed,I struggle to collect my thoughts.

I hope things go well for you,everything crossed here.

[Ern007 in reply to Oshgosh]

Thank you, not as bad as the rigid cystoscopy and get home soon after it....

Same - I watch Netflix or You Tube in the night, so tired in morning , I struggle also.

[Oshgosh in reply to Ern007]

Xx

[sassy59]

Keeping everything crossed for you Ern and hope you get to go to your local hospital. Frustrating to have to wait 10 days to discuss x-Ray results but thinking of you anyway. No more early morning calls hopefully. Xxx❤️

[Ern007 in reply to sassy59]

It is so frustrating having to wait for result, even though they know. I will be seen in up to 8 weeks and my last BCG in December will tell all.

I hope your RT has gone well Carol and hope everything is clear for you soon, I remember the system losing me for 12 months, was so frustrating and put me on a downer.

Fingers crossed for us both Carole xxx

[sassy59 in reply to Ern007]

Wishing you well as always Ern.

I’m doing ok and will be seen in February for my follow up appointment. The RT was ok and went well. Hope the system doesn’t lose me though.

Fingers crossed for us both Ern xxx🤞🏼

[Ern007 in reply to sassy59]

Thank you Carole. I hope my last result continues. I hope you don't get lost in the system as I did, that was terrible. in the past though, I got an apology. Hope everything is well in February for your Carole. xxx🤞

[sassy59 in reply to Ern007]

Thank you Ern. Take care xxx 👍❤️

[Patk1 in reply to sassy59]

Do make sure U don't get lost in system, Carole xxx

[sassy59 in reply to Patk1]

I will Pat, don’t you worry. Xxx😘

[stravinsky1]

Keeping my 🤞that you can have your cystoscopy at the nearby hospital and that both x-ray and Cystoscopy results aren't as bad as you fear

[Ern007 in reply to stravinsky1]

Thank you stravinsky1 - I have had 5 poor results and one better, this may be defining,

[Threecats]

I hope they can get that procedure sorted at your local hospital, Ern. It sounds a bit more manageable than the rigid cystoscopy and hopefully doesn’t cause so much discomfort afterwards. Hoping the results of that and your x-Ray are clear x

[Ern007 in reply to Threecats]

Thank You. Threecats, It is a lot more simple, no spinal needed and home a lot quicker.

[HungryHufflepuff]

thinking of you while you wait for the X-ray results. And I hope you’ll be able to get the cystoscopy done in your local hospital 🤞

[Ern007 in reply to HungryHufflepuff]

Thank you HH - I will know my X-ray results I think on the 15th,,Yes I hope it is local with doctors that know me.

[B0xermad]

Good luck Ern,let's hope 2024 gives you better answers for your health and they act quickly to put your mind at ease

[Ern007 in reply to B0xermad]

Thank you B0xermad. I am in hope I will get my minor procedure in March, had a very mixed 4 years,

[CDPO16]

Fingers crossed for you Ern for good outcomes xx

[Ern007 in reply to CDPO16]

Thank you Carole - My last Cystoscopy showed some improvement, I hope my next one in March continues, It was spreading and high grade, the BCG used for low grade, seems to have done something. I hope it continues, xx

[Mellywelly]

I wish you all the luck as you have been through so many ups and downs. 😉👍

[Ern007 in reply to Mellywelly]

Thank you Mellywelly - True in 2020 it was low grade. then it was high grade and now despite the odds, it's at the moment a lower grade neoplasm. xx

[Donald_1931]

Hope all turns out well for you Ern. 👍

[Ern007 in reply to Donald_1931]

Thank you Donald - I live in hope.

[Numptybrain]

Fingers and toes crossed for you Ern It’s all the waiting game these days unfortunately still better than years ago when they kept us in the dark

Take care

Wendy xx

[Ern007 in reply to Numptybrain]

Thank you Wendy - Since 2020 it's seems to have been one long wait - they lost me in 2021 - I went of the radar. Seems they remember me now.. xx

[watergazer]

Hope all goes well. I recently had x rays on my leg as I keep getting painful bones. My doctor wanted to see me to discuss them but nothing bad was showing up on them. X

[Ern007 in reply to watergazer]

Thank you watergazer - I am hoping it just an extension of my other arthritis x

[Nula2]

Hi Ern 🙋‍♀️, Hope you're given an appointment at your local hospital - one less stress to deal with if less travelling is involved. Everything crossed for that and for a good result from the xray. Take care my friend and keep us posted when you feel up to it. 🙂❤️xxx

[Ern007 in reply to Nula2]

Thank you Nula2 - I hope to get in local hospital, the one they wanted me to go was a private 15 bed one. out in the wilds from me. xx

[Nula2 in reply to Ern007]

🤞🤞🤞xxx

[Izb1]

The last couple of appointments I have been offered have been miles away and have refused them as I dont have transport and would involve two or more buses, apart from the amount of time it would take. I played on the fact that I was still on crutches. I do hope they will fit you in to your local. Fingers crossed all is well with your x ray results x

[Ern007 in reply to Izb1]

Thank you Izb1 - My problem is driving in the rain, I have WMV and soon get dazzled, so I really need my own hospital , Thank you know my X-ray results on 15 th x

[Mooka]

I’m also keeping my fingers crossed for you.

[Ern007 in reply to Mooka]

Thank you Mooka

[JJ_7]

Hope all goes well Ern xxx💗

[Ern007 in reply to JJ_7]

Thank you JJ_7

[Dottie11]

I took the flexy Cystoscopy on my second investigation and much better than my first one. Good luck. The waiting is horrible . The sooner done and over with the better. Take care. x

[Ern007 in reply to Dottie11]

Thank you Dottie - I was diagnosed in 2020 with a Cystoscopy but the 2 a year since have been rigid Cystoscopy one a TURBT which I had to stay overnight, I agree waiting is horrid,, You aslo take care x

[katieoxo60]

Hope all goes well for you Ern007, it does take around ten days for Xray results unless a consultant requests one while you are at the clinic in which case it is transferred electronically from the Xray department to the said clinic. I am like you having an Xray next week on my chest its diagnostic as they call it so don't expect a result to surgery before the end of January unless it is urgent. Best wishes and hope you can go to your local hospital.

[Ern007 in reply to katieoxo60]

Thank you katieoxo60 - The X -ray has come same time as my cystoscopy, and could be related, I doubt and hope not. Being I am seeing my GP on the 15th at her request, I would have thought it something else like to generation at the top of my back. Good luck with your X-ray

[katieoxo60 in reply to Ern007]

Thanks for reply good luck on the 15th 🙂

[Nicholatracy]

everything crossed for you 🐞

[Ern007 in reply to Nicholatracy]

Thank you Nicholatracy.

[Mopsey1897]

good luck with your X-ray results 🤞

[Ern007 in reply to Mopsey1897]

Thank you...

[jackdup]

I sure hope and pray the X-ray results are good news and hope you can get in for the cystoscopy without a long wait and that you get positive results from it as well.

[Ern007 in reply to jackdup]

Thank you jackdup - I think way I was told, I have to be seen 8 weeks from when my treatment BCG ended, - I just hope I can get in my local hospital..

[Patk1]

Hope all goes well, Ern x

[Ern007 in reply to Patk1]

Thank you Pat x

[leo60]

Everything crossed for you Ern xx

[Ern007 in reply to leo60]

Thank you Laurie xx

[Alberta56]

Best wishes. I hope the results of the x-ray will show there is nothing much wrong with your back and that you will be able to have the flexy cystoscopy locally. xxx

[Ern007 in reply to Alberta56]

Thank you, with me it seems to come in pairs xx

[Germantara]

Wishing you all the best in you're results

[Ern007 in reply to Germantara]

Thank you Germantara.

[sandybrown]

Hello,

Would it be possible for you to give me some explanation and experience on Urinay bladder biopsy.? Thank you.

An operation is booked for me on Friday 260124.

[Ern007 in reply to sandybrown]

Normally done with a Rigid Cystoscopy - Direct into your bladder, no cutting. You will gave a GA or in some cases a spinal for pain.

The prcedure does not take long and in all probability you go home the same day, but you can't drive yourself home. Hope this helps,

[sandybrown]

Thank you for your response.

Can I get back to normal after few days?

The problem we have is my wife has been called for Jury Service and she is trying to postpone the Jury service which start on Monday 27th January 2024.

The general email address is slow to respond,on Monday 22nd January, tomorrow we can talk to the local Crown Court.

We find out tomorrow by calling the local Jury Service.

Thanks.

[Ern007 in reply to sandybrown]

If you are just having bladder biopsies - You should be totally back to normal in a few days.

Just take it easy when you get home.

That is how I was with 4 quadrant biopsies.

Secret is take it easy at first, you might well find blood in your urine, but that clears up.

I just took it easy for a couple of days.

Here is a link from NHS explaining what happens with a Flexy Cystoscopy and a Rigid Cystoscopy.

I can only say how I was, people can react differently/

Good luck.

nhs.uk/conditions/cystoscop...

[sandybrown]

Thank you your reply has been helpful

[Ern007 in reply to sandybrown]

Welcome